The Friedreich’s Ataxia Research Alliance (FARA) serves as a catalyst in public, private, scientific and patient-family communities, to build worldwide support and collaborations that drive medical research advances for Friedreich’s ataxia.
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Newsletter
SCIENTIFIC NEWS
- DNA methylation in intron 1 of the frataxin gene is related to GAA repeat length and age of onset in Friedreich's ataxia patient.
- Urinary isoprostanes in Friedreich ataxia: Lack of correlation with disease features.
- The MCK mouse heart model of Friedreich's ataxia: Alterations in iron-regulated proteins and cardiac hypertrophy are limited by iron chelation.
UPCOMING EVENTS
- Aug 23 2008
Welsh Backyard Bash
Harrisburg, PA - Sep 5 2008
Dream a Little Dream Dinner Dance
North Branford, CT - Sep 7 2008
Fuzzy Buzzy Golf Tournament Windham, NH - Sep 13 2008
Crab Feed
Citrus Heights, CA
FARA NEWS
- Jimmie Johnson Adds Friedreich's Ataxia Research Alliance to Helmet of Hope
- Save the Date—December 6, 2008 Friedreich's Ataxia Symposium presented by The Children's Hospital of Philadelphia.
- $250,000 in Kyle Bryant Translational Research Awards Announced Today
- Canada First to Approve Drug in Friedreich’s Ataxia
- Keeping Kids Healthy Living with Friedreich’s Ataxia
Online grant submission allows for faster evaluation and approval of applications.
Listings of ongoing trials -
Join the Patient Registry which matches patients to the appropriate clinical trials.
You can have an impact on research advancement by providing critical funds. REQUEST KIT
