About FARA Research and Medical Professionals Patient and Family resources Ways to help
Sep 5th Science Symposium

Watch the FARA/USF Health
Science Symposium
Recorded on Sep 5th, 2013

MORE VIDEO RESOURCES
Scientific News
Epigenetic therapy for Friedreich's ataxia
Soragni E, Miao W, Iudicello M, Jacoby D, Demercanti S, Clerico M, Longo F, Piga A, Ku S, Campau E, Du J, Penalver P, Rai M, Madara JC, Nazor K, O'Connor M, Maximov A, Loring JF, Pandolfo M, Durelli L, Gottesfeld JM, Rusche JR  -  FARA Funded Research
Deferiprone in Friedreich ataxia: A 6-Month randomized controlled trial
Pandolfo M, Arpa J, Delatycki MB, Le Quan Sang KH, Mariotti C, Munnich A, Sanz-Gallego I, Tai G, Tarnopolsky MA, Taroni F, Spino M, Tricta F
Epigenetic promoter silencing in Friedreich ataxia is dependent on repeat length
Chutake YK, Lam C, Costello WN, Anderson M, Bidichandani SI
Events
September 4, 2014
USF Health Friedreich's Ataxia Scientific Symposium
Tampa, FL
Contact: FARA
September 6, 2014
FARA Energy Ball
The FARA Energy Ball

Tampa, FL
Contact: FARA
September 6, 2014
Jack's "Weapons of Grass Destruction Tour" Golf Outing
Prairie Creek Golf Course
800 E Webb Dr
DeWitt, MI
Contact: Ruth DeWitt
September 7, 2014
The 11th annual Fuzzy Buzzy Golf Tournament
Windham, NH
Contact: Paul Stanieich
September 8, 2014
Hole Out for A Cure
Peoria Heights, IL
Contact: Rick Peters
September 15, 2014
2nd Annual FARA Invitational Golf Classic
Glencoe Golf & Country Club
Elbow River Drive
Calgary, AB, Canada
Contact: Bill Alefantis
September 20, 2014
5th Annual Race for Matt and Grace
Bryant University
1150 Douglas Turnpike
Smithfield, RI
Contact: FARA
SEE ALL EVENTS
2015 Scientific Conference
Charity Navigator 4 Stars
PATIENT REGISTRY

The only worldwide registry of Friedreich’s ataxia patients.

APPLY FOR GRANTS

Online grant submission allows for faster evaluation and approval of applications.

CLINICAL TRIALS

Listings of ongoing trials -
Join the Patient Registry which matches patients to the appropriate clinical trials.

FUNDRAISING IDEAS

You can have an impact on research advancement by providing critical funds.

eAdvocate
Find us on Facebook
FARA Store