FARA - The Friedreich's Ataxia Research Alliance

Ronde Barber and Kyle Bryant talk about Friedreich's Ataxia

John Isner has been recognized as one of the future stars of American Tennis. John is ranked #2 in the USA and #18 in the world and holds the record for the longest game in tennis history. John helped raise $50k at FARA's Ace For a Cure in Tampa!

Join the Cast of Army Wives.
Take Action, Donate, Cure FA
Donate HERE.

Introduction to FARA More

Trailer for The Ataxian
a film by Kevin Schlanser

This film will document
Team FARA in Race Across America

May 17, 2012
St. Catherine’s
Annual Jog-A-Thon
Anaheim, CA
Contact: Greg Jones
May 19, 2012
NJ Seaside Stride
Seaside Heights, NJ
Contact: Karen O’Brien
May 19, 2012
Rockin for a Cure
to Benefit FARA
and The FA Project
Wakefield, MA
Contact: Erin O'Neil
Contact: Richie Courier
May 22, 2012
Outback/FARA/Children’s National Medical Center
golf event
Waldorf, MD
Contact: FARA
June 1, 2012
Team RTO
Reno-Tahoe Odyssey
Reno, NV
Contact: FARA
June 9, 2012
Chase-Perry Yard Sale
Fairhaven, MA
Contact: Becky Chase
June 9, 2012
Ouback Steakhouse Luncheon
Tacoma, WA
Contact: FARA
June 9, 2012
Izzy's Angels Concert
Alameda, CA
Order Tickets Online
Contact: FARA
June 17, 2012
Team FARA
Team Tri 4 Gracey
Gold Coast Triathlon
Long Island, NY
Contact: FARA
June 18th, 2012
Outback Luncheon
White Plains, NY
Contact: FARA
July 15th, 2012
Team FARA
Team Tri 4 Gracey
Mossman Sprint
Norwalk, CT
Contact: FARA
July 18th thru 21st, 2012
FA Woodstock
LaPorte, IN
Contact: Paula Hook
July 22, 2012
Ride Ataxia Chicago
Chicago, IL
Contact: FARA
September 8, 2012
FARA Energy Ball
Tampa, FL
Contact: FARA

May 14, 2012
St. Catherine’s Annual Jog-A-Thon Supports Research for Friedrich’s Ataxia
May 13, 2012

Impossible is nothing
The story of Sam Bridgman
Apr 30, 2012
Junior receives award named in memory of advocate for disabled
Apr 30, 2012
News10 - Family fights disease through fundraising and Ride Ataxia
Mar 28, 2012
Hearing Webinar
Recorded Mar 27, 2012
(1 hour audio recording)
Mar 25, 2012
Ride Ataxia Dallas
in the News:
Denton bike riders aim to beat rare disease

North Texas Bike-A-Thon For Neuromuscular Disease
Mar 22, 2012
Second annual cycling event planned Saturday
(scroll down to 3rd article)
Mar 22, 2012

Teen's rare disease disconnects brain from nervous system
Mar 15, 2012
FARA Press Release Partnership and Collaboration take promising therapy, RG2833, from discovery to first-in-human trial in Friedreich’s Ataxia (FA)
Mar 11, 2012
Positive Pakistani:
Steel wheels Asad Rafi was determined not to let a metal chair define who he was
Mar 8, 2012
- FARA Webinar -
Research on Hearing loss in FA - Tuesday March 27th 7:00pm EST
Mar 2, 2012
Speaker challenges students to define themselves - Motivational speaker Sean Baumstark kicks off Diversity Dialogues Week

APPLY FOR GRANTS

Online grant submission allows for faster evaluation and approval of applications.

CLINICAL TRIALS

Listings of ongoing trials -
Join the Patient Registry which matches patients to the appropriate clinical trials.

FUNDRAISING IDEAS

You can have an impact on research advancement by providing critical funds. REQUEST KIT

FARA PARTNERS