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FARAFARA Cure FA

Morgan Layton

Morgan LaytonName: Morgan Layton

 

Age: 27

 

Where do I you call home: Sewell, New Jersey

 

Education: Some College but in a "Work-study Program."

 

What is your relationship status: Single

 

Who do you live with: I currently live with my parents and brother, David (24, has FA too) and 2 dogs and 2 cats.

 

What is a typical day for me: I wake up to get a shower, get dressed then feed my cats. I usually just watch tv most days or just hang out with family. I also enjoy watching movies and love to bake!

 

When were you diagnosed: I was diagnosed by Dr.Lynch (who's the best!) at CHOP. When I was 16 I'm now 27 years old! I use a walker daily and a wheelchair for long
distances.

 

I chose to become a Fara Ambassador because I deal with it every day and understand the struggles with this and want to help others with fa to understand and deal with it in a positive way! Some days it's hard, but I always try to think positive and move forward! CureFa


About the Author

The FARA Ambassador Program

The FARA Ambassador Program

The FARA Ambassadors are a united team of patient volunteers living with FA who are committed to supporting FARA in the search for a treatment and cure.
 
Together we seek to know more about FA, and FARA so we can be prepared to represent the community when the opportunity arises; speaking at events, to volunteers, potential donors, scientific groups, pharma partners, media interviews and other awareness and fundraising opportunities. We believe support is key to continued success toward our ultimate goal of treatment and a cure. Participants in the FARA Ambassador Program are passionate about building and upholding relationships within the FA community.
 
The FARA Ambassadors are positive, supportive, peer representatives for the FA community, actively raising awareness and funds for FARA. To learn more about the FARA Ambassador Program or to have a FARA Ambassador speak at your event, please contact: info@cureFA.org.

 

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