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FARAFARA Cure FA

Osama Aweek

OsamaHello, my name is Osama Aweek and I am a FARA ambassador! I was diagnosed when I was 11 and now I'm 18, I'll be 19 on April 16th, 2019. I'm from Tripoli, Lebanon (Asia). I failed grade 8 in my school because I was absent 75% of the time and the school wasn't very helpful. They didn't give me more time in tests or more time to study. I had to go to another city, a 3h drive once a week at least to see doctors, I met every doctor in Lebanon. Shortly after my diagnoses and I was diagnosed with cardiomyopathy and scoliosis.

The first few years after my diagnoses I couldn't get along with my disease. I was bullied for the way I looked or how I walked, but here I am today, a SURVIVOR. I couldn't tell anyone what was wrong at school till the end of grade 10, 4 years after my diagnoses. I decided to spread awareness then and I did a presentation about FA at the end of grade 10.

 

I have 3 sisters and my mom, they all support and help me with anything I want. They're the reason that I'm still walking now. None of my siblings have FA. They never did the test to find out if they are carriers for FA.

I finished studying with Information technology diploma 2 years ago, I couldn't go to a university in Lebanon, I'll do online certificates for cybersecurity and then I'll go to a university. I hope for the best but I prepare for the worst all the time.

Depression is always hidden in the dark waiting for the weakest point to attack you in it, but I have the greatest support group, my closest friends, they're the best.

Favorite quote: "why do we fall? So that we can learn to pick ourselves up." - The Dark Knight trilogy.

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