Hello, my name is Brittany Sommerfield and I am a FARA ambassador. I was diagnosed when I was 13 and I am 24 as of November 2018. I am a Canadian and a Winnipeger.
At first, when I was diagnosed I tried to ignore the reality. If anyone asked if I was sick or why I was so clumsy I would tell them there was nothing. It wasn't until after grade 11, 5 years later, until I accepted the illness, I would tell people what was wrong- I wouldn't keep it a secret and I would help to spread awareness I decided
I organized a fundraiser at my high-school, my friends all helped and we raised a whopping $6,000 Canadian. I also held two socials (which are a Manitoba thing but it is pretty much a fundraiser/party). So far I have attended five different ataxia conference; I have also participated in multiple trials in UCLA and Atlanta Georgia (you can read my patient perspective to learn more, click here.