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FARAFARA Cure FA

Cure FA Soirée: React with Music 2019

Cure FA Soiree CollageThank you, Gehr family of Edmond, OK, for organizing an exceptional FARA fundraising event! Cure FA Soirée: React With Music was held Saturday, May 18, 2019, also FA Awareness Day at the Edmond Hilton Gardens Inn. Kyle Bryant shared a few words on how we react to FA and how the Gehrs proactively reacted to their son, Michael's diagnosis several years ago. Michael Gehr, himself, spoke about his diagnosis and FA. Researcher, Layne Rodden, from the OU College of Medicine/University of Oklahoma also shared a few words about her experience and discoveries on the cellular level of FA research.

Cure FA Soiree Collage 2The majority of the evening was filled with live music, dinner, and camaraderie. $120.000 was raised for FA research. If you enjoy an excellent climate-controlled venue, a dressy casual atmosphere, a delicious buffet, talented musicians and various singing acts or supporting some great people and a great cause, please attend this annual event.

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