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FARAFARA Cure FA

Teen Hangouts - May 2018

FA Teen hangout May 2018Join the FARA Ambassadors for a hangout for teenagers with ataxia. FA Teen Hangouts are hour-long web-based hangouts. *We are now hosting them on WebEx. If you had a hard time joining our Google Hangout, you aren’t alone. We hope you’ll try again on WebEx.

If you don't have ataxia, you are not allowed to participate in the hangout. There will also be at least three adult FARA Ambassadors present. The adults will be there to help keep the conversation safe and going.

This will be our second month of having Teen Hangouts lead by the teens themselves. Madelyn Frederick (she also made our great graphic this month) will be our leader.

This month's theme: What Motivates and Inspires You?

When: Thursday, May 31st 8-9PM ET (The hangout opens 30 minutes early to try to work out technical issues, please remember we are volunteers not IT professionals, come early if
you’ve never attended a hangout before.)

Who: Teens ages 13 to 19 (Please note: all the teens will be together this month, but we plan to host separate hangouts for young and older teens in the future.)

Where: On WebEx so if you have access to the Internet and speakers and a camera on your device, you can come!

How: If you are under 18, you need to get your parents or guardian to sign a consent form (click HERE). This should be emailed to jeantw62@gmail.com. Parents/guardians can also ask questions at this email address. Then, email farateenhangouts@gmail.com and request to join. A minimum of a half hour before the hangout opens you will be sent a link to join the hangout on WebEx.

Please send us an email to either address if you have questions!

See you soon!

FA Hangouts May 2018

May HangoutHey, Hangouts participants! We have an update: Hangouts will now be held on a new platform, WebEx....this should help provide more consistent quality with Hangouts! Not much will change, we just won't be using Google+. You don't need to do anything!

While we arrange things, we will be skipping Hangouts in May....NO HANGOUTS IN MAY 2018....but we will return in June!! Thanks for understanding and we hope to see you then!

Any questions? Let us know at fahangouts@gmail.com

Thanks for Hanging Out with us!
-The Hangouts Team

FA Hangouts - April 2018

FAHangouts April18The FARA Ambassador Program presents an FA Hangout talking about: Life Hacks! Allie and RJ are leading the discussion. So this is the perfect opportunity to learn some special tricks for living with FA.

At FA hangouts we laugh, we connect, we hangout, we learn from and about each other...it is so fun! It is just an informal discussion with a theme. We just talk when the theme has run its course, no pressure. People who just want to listen are very welcome!

Every hangout is open to anyone with FA and a translator if needed for hearing or speech difficulties.

When: Hangouts will be held Tuesday April 24th, Wednesday, April 25th, and Thursday, April 26th (mark your calendars, FA Hangouts will be the last consecutive Tuesday, Wednesday, and Thursday of the month, except on holidays and the like) at 8-9:30 PM EDT each of the three days.

How: Email fahangouts@gmail.com to sign up or ask questions. Google (not us!) limits hangout capacity to 10 devices. FA Hangouts do fill up. It is first come, first served. So, the earlier you sign up, the more likely you are to get the date and time you want. Lately all our hangouts have been filling up. If you signed up and can’t make it, please let us know so we can give the slot to someone else.

An email will go out (at the latest) 30 minutes prior to your assigned time with a link to join the Hangout. Feel free to come early for a pre-hang. We will open the hangout room 15 minutes early, but the topic conversations will begin at the top of the hour.

See you soon!

Teen Hangouts - April 2018

TeenHangoutsApril18Join the FARA Ambassadors for a Google hangout for teenagers with ataxia. FA Teen Hangouts are hour-long web-based hangouts. If you don't have ataxia, you are not allowed to participate in the hangout. *There will also be at least three adult FARA Ambassadors present. The adults will be there to help keep the conversation safe and going.

This month we are beginning to have Teen Hangouts lead by the teens themselves. Kate Walker is our leader this month. The theme this month will be: Comfort Zones; what’s yours? Do you leave your comfort zone and if so how?

When: Thursday, April 26th 8-9PM ET. (The hangout opens 30 minutes early to try to work out technical issues. Please remember we are volunteers not IT professionals, come early if you’ve never attended a hangout before.)

Who: Teens ages 13 to 19 (Please note: all the teens will be together this month, but we plan to host separate hangouts for young and older teens in the future.)

Where: On Google hangouts so if you have access to the Internet and speakers and a camera on your device, you can come!

How: If you are under 18, you need to get your parents or guardian to sign a consent form (click HERE). This should be emailed to jeantw62@gmail.com. Parents/guardians can also ask questions at this email address. Additionally, they can get a consent form here if they need to. Then, email farateenhangouts@gmail.com and request to join. A minimum of a half hour before the hangout opens you will be sent a link to join the hangout. Please note: if you have a free Google Plus account it makes it easier for us to invite you and make sure you get the invitation so, we recommend (not require!) getting one.

Please send an email to either address if you have questions.

See you soon!

Teen Hangouts - March 2018

TeenHangoutsMarch18Join the FARA Ambassadors for a Google hangout for teenagers with ataxia. it is an hour-long web-based hang out. If you don't have ataxia, you are not allowed to participate in the hang out. There will also be at least three adult FARA Ambassadors present. The adults will be there to help keep the conversation safe and going.

The theme this month will be: a discussion about the film The Ataxian. We ask participants to view the film first and bring your thoughts and questions. You can stream the film at:
Amazon
iTunes
Google Play

*Teens who are signed up, with the appropriate consent can, upon request, be reimbursed for renting the film.

We plan to be joined by a couple of our fellow ataxians featured in the film. While we can’t guarantee that, it is the plan and we are super excited.

When: Thursday, March 29th 8-9PM ET (the hangout opens 30 minutes early to try to work out technical issues, please remember we are volunteers not IT professionals, come early if
you’ve never attended a hangout before)

Who: Teens ages 13 to 19 (Please note: all the teens will be together this month, but we plan to host separate hangouts for young and older teens in the future.)

Where: On Google hangouts so if you have access to the Internet and speakers and a camera on your device, you can come!

How: If you are under 18, you need to get your parents or guardian to sign a consent form (click HERE). This should be emailed to jeantw62@gmail.com. Parents/guardians can also ask questions at this email address. Additionally, they can get a consent form here if they need to. Then, email farateenhangouts@gmail.com and request to join. A minimum of a half hour before the hangout opens you will be sent a link to join the hangout. Please note: if you have a free Google Plus account it makes it easier for us to invite you and make sure you get the invitation so, we recommend (not require!) getting one.

Please send an email to either address if you have questions!

See you soon!

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