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FARAFARA Cure FA

FA Hangouts 6

The FARA Ambassador Program presents the sixth FA hangouts with the theme of Careers and FA.
 
We have had several rounds of successful FA hangouts. We laughed, we connected, we hung out, we learned from and about each other...it was so fun! 
 
This month’s hangout is open to anyone with FA and a translator if needed. Tell us how your career is going, your struggles and your successes, and/or get career tips from people who are making it happen. Hangouts will be held Wednesday June 24 and Thursday June 25 (mark your calendars, FA Hangouts will be the last Wednesday and Thursday of the month, except on holidays and the like) at 7 & 9PM EST both days.
 
More times will be added if needed. Email Mary at mary.bircher@gmail.com to sign up. Please indicate if there are any times that do not work for you and which times you’d prefer. We will try to accommodate everyone.
 
An email will go out 30 minutes prior to your assigned time with a link to join the Hangout. Feel free to come early for a pre-hang. We will open the hangout room a half hour early, but the topic conversations will begin at the top of the hour.
 
See you soon!
 
 

FA Hangouts 4.0

Have FA? Like or want to travel? Join our fourth FA hangout to talk about travel experiences you've had or want to have.

FA Hangouts are just a bunch of people with FA talking to each other using Google Hangouts. Not a lecture just people with FA sharing on a specific topic.

Dates and times: Thursday and Friday, March 26 and 27 at 7 and 9 PM EST as long as there are people who want to hang out. 
Read more: FA Hangouts 4.0

FA Hangouts

Come join us for FA hangouts! Once a month the Ambassador Program hosts a series of online hangouts for people with FA to talk to each other for an hour and a half. We pick a topic that will be relevant to people in the FA community. Topics include things like exercise and fitness, setting and pursuing your goals, or clinical trial participation. Sometimes we invite guests from the community to share their experiences and personal expertise.

We like to keep a relaxed and friendly atmosphere in the hangouts. We have plenty of regulars, and there are always new faces, as well. You can come in with lots to say or just sit back and listen to other people's stories. FA is rare, but the hangouts are a great opportunity to connect with people you wouldn't otherwise get a chance to meet. We get people from all over the United States and even around the world who can all relate to each other's experiences. We laugh, we connect, we hang out, we learn from and about each other...it's a lot of fun!

See what other people have to say about hangouts about hangouts!

Hangouts usually happen at (new time)  8PM - 9:30PM Eastern on the last Wednesday and Thursday of each month (just one longer hangout per night). Check the Ambassador Program blog for each month's topic or see our schedule of upcoming hangouts. To sign up, send an email to fahangouts@gmail.com with the times you can attend. You will get an email with an invitation link to join the hangout. Hangouts are hosted on Google+ (get a free account at plus.google.com) and should work with any webcam and every major web browser.

 

 

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FA Hangouts 2.0

Greetings,

We had three successful FA Hangouts last month discussing What does FA mean to you?. We laughed, we connected, we hung out. Thank you to all who participated in the first steps of the program.

This month's topic will be Everyday At-home Adaptations and Modifications and is open to all persons with FA and a translator if needed. Hangouts will be held Monday January 26 and Tuesday January 27 at 7 and 9 PM EST both days. More times will be added if needed. Email me at john.cernosek@gmail.com to sign up. Please indicate if there are any times that do not work for you. We will try to accommodate everyone.

An email will go out 30 minutes prior to your assigned time with a link to join the Hangout. Feel free to come early for a pre-hang. Topic conversations will begin at the top of the hour.

Read more: FA Hangouts 2.0
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