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Hi Everyone! My name is Megan. I am 29 and I'm from a small town called North Baltimore, Ohio. I am the mother of one beautiful 4 year old little girl named Olyvia and I just recently got married! I am a student at The University of Cincinnati but I do it all online. I am majoring in Health Information Management.

I was diagnosed with FA at age 18. When I was about 15, I was running track, playing volleyball and very active and began being picked on by coaches, teammates and friends for the way that I walked and ran. My knees locked and I was very flat-footed and awkward. My brother told me to loosen up because I walked like a “soldier”.

When I was 17, I got in a small accident (fender bender) and began getting migraines. While I was at the neurologist office, I decided that I would ask him why I walked so funny. He did a bunch of tests and found that I had FA. That same year, I was told of a girl in the next town over with my same last name who had a hard time walking too. I found out after some research that she is a 3rd cousin of mine. Same age. We have used each other a lot since for support and questions here and there.
I go to the gym a few times per week and I am told on a regular basis that I am “inspiring”. I don’t know about that but, that is why I want to be an ambassador. If I can help anyone to fight harder by “inspiring” them, I want to do it!

About the Author

The FARA Ambassador Program

The FARA Ambassador Program

The FARA Ambassadors are a united team of patient volunteers living with FA who are committed to supporting FARA in the search for a treatment and cure.
Together we seek to know more about FA, and FARA so we can be prepared to represent the community when the opportunity arises; speaking at events, to volunteers, potential donors, scientific groups, pharma partners, media interviews and other awareness and fundraising opportunities. We believe support is key to continued success toward our ultimate goal of treatment and a cure. Participants in the FARA Ambassador Program are passionate about building and upholding relationships within the FA community.
The FARA Ambassadors are positive, supportive, peer representatives for the FA community, actively raising awareness and funds for FARA. To learn more about the FARA Ambassador Program or to have a FARA Ambassador speak at your event, please contact:


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