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FARA
Cure FA
FARA Ambassador ProgramThe Ambassadors are a service team within the FARA organization. Participants in the FARA Ambassador Program are passionate about building and upholding relationships within the FA community. Together we seek to know more about the research and pharmaceutical pipelines being developed through FARA in order to be better prepared to represent the FA community when opportunities arise to educate the medical community and potential donors. When meeting with scientific groups, pharma partners, and the FDA, our purpose is to promote awareness of the patient perspective of living with FA. We believe our dedicated support is key to continued success toward our ultimate goal of treatments and a cure.
The FARA Ambassadors are positive, supportive, peer representatives for the FA community, actively raising awareness and funds for FARA. To learn more about the FARA Ambassador Program or to have a FARA Ambassador speak at your event, please contact: info@cureFA.org.
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This month's hangout will be led by Jake Tompkins and Erin O'Neil. We are going to talk about the holidays coming up. Positive or negative, Let's talk about it.
At FA Hangouts we laugh, we connect, we hang out, we learn from and about each other...it is so fun! It is just an informal discussion with a theme. We just talk when the theme has run its course, no pressure. People who just want to listen are very welcome!
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Name: Francis (Frank) Sullivan
Age: 69
Where do you call home? N. Billerica, Massachusetts (~20 mi. NW of Boston)
Education degree(s): AS/MIS Northeastern Univ.
What is your relationship status? Married 44 years; - 2 married daughters and 3 granddaughters.
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Name: Christina Cordaro
Age: 28
Where do you call home? I've lived in Philadelphia, PA, for the past 7 years, but I am from Bucks County, PA.
Education: I have received my Master of Business Administration in Hospitality Management and Bachelor's Degree in Hotel & Lodging Management, both from Johnson & Wales University. I currently work at The Bellevue Hotel, in the Unbound Collection by Hyatt. My career goal is to be a Director of Revenue Management.
What is your relationship status? I recently got married this past October to my husband, Justin! My immediate family includes my dad, mom, sister, Catherine (32) and brother, Matthew (17).
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Name: Alison Love
Age: 46 years
Where do you call home? Paisley, Scotland
Education degree(s): BA (hons) Community and Youth Work
What is your relationship status? I am single (divorced) living on my own
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Join the FARA Ambassadors for a hangout for teenagers, 13-19, with ataxia (of any form). FA Teen Hangouts are hour-long web-based hangouts. If you don't have ataxia, you are not allowed to participate in the hangout. There will also be at least three adult FARA Ambassadors present. The adults will be there to help keep the conversation safe and going
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