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The Ambassadors are a service team within the FARA organization. Participants in the FARA Ambassador Program are passionate about building and upholding relationships within the FA community. Together we seek to know more about the research and pharmaceutical pipelines being developed through FARA in order to be better prepared to represent the FA community when opportunities arise to educate the medical community and potential donors. When meeting with scientific groups, pharma partners, and the FDA, our purpose is to promote awareness of the patient perspective of living with FA. We believe our dedicated support is key to continued success toward our ultimate goal of treatments and a cure.
The FARA Ambassadors are positive, supportive, peer representatives for the FA community, actively raising awareness and funds for FARA. To learn more about the FARA Ambassador Program or to have a FARA Ambassador speak at your event, please contact: info@cureFA.org.
The blog features posts about FARA events, articles about living with FA, spotlights on individuals throughout the FA community, weekly interviews to “Meet the Community,” and more. We hope that you will be inspired, uplifted and encouraged through the FARA Ambassador Blog!
This Meet the Community interview was originally published in January 2015. Wenses is now a participant in the
FARA Ambassador Program.
Name: My full name is Wenseslao Reyes. I go by Wenses though. My friends call me Yayerr; a nickname given to me by my baby brother in 2007.
Where do you call home? I’m from Portland, Oregon. Actually, I live in Aloha. But it's close!
Occupation/Employment: I don't have a job. I'm job hunting, but I'll probably wait until I finish school. I am also looking for an internship to further my skills/experience. Right now, I attend PCC. It's a community college. I'm working on transferring to PSU (maybe) and I'm going to major in business, accounting to be clearer. I love numbers! I'm also good with money! I'll probably study personal finance too. But, who knows.
This Meet the Community interview was originally published in November 2014. Jacob is now a participant in the
FARA Ambassador Program.
Name: Jacob Tompkins
Where do you call home? Tivoli, New York
Occupation/Employment: I own and operate a recording studio in NY.
Education: Red Hook High School, Bard College.
How long have you been living (or known you are living) with Friedreich's Ataxia? I began showing symptoms at 16. All of my teachers and peers would accuse me of being drunk every day. I was diagnosed when I was 22. A few days before I left for a nation wide tour with my band.
Do you have any known family history of Friedreich's Ataxia or similar symptoms? No.