Name: Marianne Hakim
Where do you call home? Beirut, Lebanon
Education: B.A in advertising & marketing and Masters in media studies- My thesis which is the backbone of Friedreich Ataxia Lebanese Association (FALA) — an NGO I established — gave me the opportunity to meet and connect with people, who are affected, like me, by FA in my country. The main objectives are to spread awareness about the benefits of the therapies available to medical experts as well, connect people with FA to doctors and therapists and offer them support, orientation, and care, last but not least encourage inclusion in public places, educational institutions, and workplace.