Hi there! Thank you for your interest in fundraising for FARA. The community has always been essential to powering FARA’s mission to treat and cure FA, and we’re excited that you want to help. This page contains your personal fundraising toolkit, designed to help you make a meaningful impact in the fight against FA!
We know that asking for support can feel intimidating, but it’s all about perspective. People want to help, and when you share your story and your purpose, you invite them to be part of something meaningful.
This fundraising hub offers a variety of ways to get involved, whether you’re a first‑time fundraiser or a seasoned champion. Explore the options below and choose the path that feels right for you. Together, every effort brings us one step closer to treatments and a cure.
Grassroots events are community‑driven fundraisers that give you the flexibility to choose the kind of local event that feels right for you and your community.
Team FARA is a community of supporters who raise awareness and funds by taking on endurance challenges or celebrating personal milestones in ways that inspire others.
Letter‑writing campaigns allow people to easily educate family and friends about FA, share their personal experiences, and raise support for research.
Through accessible rides of all distances, FARA-hosted rideATAXIA events bring together FA families, researchers, and their supporters to push their limits, build community, and fuel critical research.
rideATAXIA Hometown offers teammates the opportunity to ride individually or host local events for their community.
Bring your community together by hosting a give‑back night at a local restaurant or shop, where a portion of every purchase fuels FA research.
You can fundraise anytime—not just through events! Explore customizable peer‑to‑peer fundraising options and create a page that fits your unique idea.
The FARA Staff is experienced in event planning and fundraising. The team is happy to support you in planning your event — brainstorming ideas, building a website, gathering a guest list, helping to evaluate venues and vendors, linking you with a mentor, and more. Whatever you need, we are here to help and to partner with you. Contact us at info@curefa.org.
Learn how FARA can help you in your fundraising efforts. Explore our Fundraising Manual here.
FARA utilizes the GoFundMe Pro fundraising platform to create event websites, and to collect donations and registration fees. FARA Staff will work with those hosting grassroots events or campaigns to decide which website option is appropriate and design the website using your desired event branding. Explore Website Platform Options here.
FARA publishes all fundraising events on our website’s Events Calendar (curefa.org/events).
FARA Monthly Newsletter: FARA includes a list of upcoming events in our monthly newsletter. Just let us know when your event is, and we can add it in!
Press Releases: FARA Staff can work with you to write a press release for your event and help share it with your local media.
Social Media: FARA posts a monthly list of upcoming events on social media with the event name, date, location and a note to visit curefa.org/events for more information. Due to the number of grassroots events, we are unable to share customized posts for grassroots events. We encourage organizers to host their own social media pages to engage with your event supporters and create excitement around the event.
FARA has created sample letters to help with fundraising that can be accessed here.
Visual tool for communicating the progress of research and development on lead therapeutic candidates.
A 8.5” x 11” printable sheet providing general information about FARA.
Request materials such as 4" x 6" card providing general information about FARA.
Explore FARA’s YouTube library for videos that answer key questions about FA, explain the impact each donation can make, and more.
Large FARA logo banners are available to hang at event.
FARA Awareness bracelets, pens, and bumper stickers.
FARA merchandise is available for sale on FARA’s Bonfire store. A portion of each sale is donated back to FARA.
The FARA logo is to be used in accordance with the FARA Style Guide. Please submit any materials displaying the FARA logo for review by FARA prior to publication. For full FARA brand guidelines as well as a press kit, visit the Media page.
