The Friedreichs Ataxia Research Alliance (FARA) serves as a catalyst in public, private, scientific and patient-family communities, to build worldwide support and collaborations that drive medical research advances for Friedreichs ataxia.
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Newsletter
SCIENTIFIC NEWS
- Subjective Improvement in Proprioception in 2 Patients With Atypical Friedreich Ataxia Treated With Varenicline (Chantix)
- Novel antibody-based strategies for the rapid diagnosis of mitochondrial disease and dysfunction.
- Overexpression of the yeast frataxin homolog (Yfh1): contrasting effects on iron-sulfur cluster assembly, heme synthesis and resistance to oxidative stress.
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July 12, 2009
Carolina's WE Foundation - Cooper River Bridge Fun Run/Walk
Charleston, SC
Info@curefa.org -
July 18, 2009
Outback Walk & Family Carnival
Proelifich Park - Greensboro, NC
Info@CureFA.org -
July 21, 2009
Outback Luncheon
Dewitt, NY
johnsons@summitsolutions.net -
July 21, 2009
Outback Luncheon
Yonkers, NY -
July 26, 2009
San Francisco Half Marathon
Outback Team for FARA
San Francisco, CA
info@curefa.org -
August 1, 2009
San Francisco Bay Area Walk
San Francisco, CA
gaylordphoto@yahoo.com -
August 8, 2009
Backyard Bash III
Harrisburg, PA
welshes@comcast.net -
August 29, 2009
FARA Energy Ball
Tampa, FL
Julie.faraenergyball@curefa.org -
June 1, 2009
Request for Proposals: Kyle Bryant Translational Research Award sponsored by Ride Ataxia
Letter of Intent Deadline:
July 15, 2009
Proposal Deadline:
July 31, 2009 -
June 2009
Fitness Together Helps Client in Wheelchair Fight Disease with Exercise -
May 26, 2009
New study to examine whether smoking cessation drug Varenicline may benefit adults with Friedreich’s ataxia -
May 13, 2009
CBS3 News Health Alert- Friedreich's Ataxia
- New CD Release, 12/18/08: THE VOYCES ~ A NEW DAY NEVER FARAWAY : A special compilation of live and (mostly)
previously unreleased songs.
100% of the proceeds go directly to The Friedreich's Ataxia Research Alliance (FARA)
UPCOMING EVENTS
FARA NEWS
Online grant submission allows for faster evaluation and approval of applications.
Listings of ongoing trials -
Join the Patient Registry which matches patients to the appropriate clinical trials.
You can have an impact on research advancement by providing critical funds. REQUEST KIT






