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FARAFARA Cure FA

Meet the Community

You are not alone. The entire FA community, also known as the FAmily, is taking this journey with you. Meet a few of our dynamic people with FA below.  New Meet the Community interviews are posted every Monday, so be sure to visit often.  Please e-mail info@curefa.org if you would like to be interviewed for a Meet the Community post.
 

FARA Ambassadors

The FARA Ambassadors are a group of people living with FA who are committed to supporting FARA in the search for a treatment and cure. They represent the community by speaking at events, meeting pharmaceutical partners, giving media interviews, and more.

Meet the FAmily!


The Dürr Family

Leila DurrName: Leila Dürr

Age: 14

Where do you call home? Pretoria, South-Africa

Education: 8th grade in Afrikaans Hoër Meisies Skool (An all-girls school)

Who do you live with? I live with my parents and my little brother Simon. We also have a big animal family at home.

What's a typical day for you? I go to school with my wheelchair or my walker and when I get to school I switch to my scooter. That's how I get to my classes. After school, I go home and do homework. Then I relax a bit by watching Youtube or reading a book. During the exams, I go to my friend's house to study when we have finished writing for the day.

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Frank Sullivan

Frank SullivanName: Francis (Frank) Sullivan

Age: 69

Where do you call home? N. Billerica, Massachusetts (~20 mi. NW of Boston)

Education degree(s): AS/MIS Northeastern Univ.

What is your relationship status? Married 44 years; - 2 married daughters and 3 granddaughters.

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Christina Cordaro and Catherine Logan

Logan Siblings 2Name: Christina Cordaro

Age: 28

Where do you call home? I've lived in Philadelphia, PA, for the past 7 years, but I am from Bucks County, PA.

Education: I have received my Master of Business Administration in Hospitality Management and Bachelor's Degree in Hotel & Lodging Management, both from Johnson & Wales University. I currently work at The Bellevue Hotel, in the Unbound Collection by Hyatt. My career goal is to be a Director of Revenue Management.

What is your relationship status? I recently got married this past October to my husband, Justin! My immediate family includes my dad, mom, sister, Catherine (32) and brother, Matthew (17).

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