Name: Alison Love
Age: 46 years
Where do you call home? Paisley, Scotland
Education degree(s): BA (hons) Community and Youth Work
What is your relationship status? I am single (divorced) living on my ownAdd a comment
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You are not alone. The entire FA community, also known as the FAmily, is taking this journey with you. Meet a few of our dynamic people with FA below. New Meet the Community interviews are posted every Monday, so be sure to visit often. Please e-mail firstname.lastname@example.org if you would like to be interviewed for a Meet the Community post.
The FARA Ambassadors are a group of people living with FA who are committed to supporting FARA in the search for a treatment and cure. They represent the community by speaking at events, meeting pharmaceutical partners, giving media interviews, and more.
Name: Annika Venter
Where do you call home? I currently live in Cape Town South Africa.
Education: I am busy with my last year homeschooling.
What is your relationship status? I am single. I live with my twin sister and my mom.
What's a typical day for you? My day is very simple, I normally do school work, exercise, take my dog to the beach, go to physio and visit family and friends who live nearby.Add a comment
Name: Kailey Newcity
Where do you call home? Lake Charles, Louisiana
Education (degree(s): Bachelor of Science in Medical Assisting, but I cannot work in the field. I work as a check out receptionist (sit down job) at an Orthopedic Clinic part-time.
What is your relationship status? I have a boyfriend of 5 years who I live with. No kids.
What's a typical day for you? I work three days a week, do physical therapy twice a week, & see a chiropractor once a week.
How long have you known you are living with FA? I started having obvious symptoms 4 years ago & was misdiagnosed with Charcot Marie Tooth Disease in 2015. I found in February of this year that I actually have FA.Add a comment
Name Jade Brim
Where do you call home? I live in Daytona Beach. FL.
Education (degree(s): I have a Master's in teaching. FA has led me many great places that have laid the foundation for my future. FA led me to the doctor's office where I met my husband. FA led me to an amazing career teaching math online.
What is your relationship status? I am happily married.Add a comment