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FARAFARA Cure FA

Meet the Community

You are not alone. The entire FA community, also known as the FAmily, is taking this journey with you. Meet a few of our dynamic people with FA below.  New Meet the Community interviews are posted every Monday, so be sure to visit often.  Please e-mail info@curefa.org if you would like to be interviewed for a Meet the Community post.
 

FARA Ambassadors

The FARA Ambassadors are a group of people living with FA who are committed to supporting FARA in the search for a treatment and cure. They represent the community by speaking at events, meeting pharmaceutical partners, giving media interviews, and more.

Meet the FAmily!


Nicole Kramer

Nicole KramerName: Nicole Kramer

Age: 24

Where do you call home? Chicagoland suburbs

Education: Bachelor's Degree in Sociology, Certificate in Criminology, and Associate's of Science

What is your relationship status? Who do you live with? Not in a relationship and not currently looking. I live with my mom right now.

What's a typical day for you? I work right now. Some days I start at 5:30 am or as late as 9 am. Each day is different. When it is nicer weather I take my service dog for a 2 or 3-mile walk as often as possible.

Read more: Nicole Kramer

Lesley Eertink

Lesley 5Name Lesley Eertink.

Age: I am 32, but mentally feel like 25 

Where do you call home? Amsterdam, The Netherlands. (Europe)

Education: Masters in Law.

What is your relationship status? Do you have children? I am single and living on my own. I have no children. Still waiting for the perfect match! Still no luck in that though.

What's a typical day for you? My day always starts with a healthy breakfast. I work 4 days a week as a company lawyer for the Dutch government from Monday till Thursday. Besides that, I exercise 5 days a week to keep my body in shape. Also because I am a bit vain. After work and exercise, I prepare a nice and healthy meal for myself. And when there is time left I have time for my addiction...Netflix.

Read more: Lesley Eertink

Geoffrey J Fox

Geoffrey FoxName: Geoffrey J Fox

Age: 39 years old

Where do you call home? Northern Michigan

What is your relationship status? I am a single guy with no children. I live alone with my dog, but my mom and stepdad live a couple houses over when I need help.

What's a typical day for you? My days are about creation. I have an undeniable urge to create. I guess the simple answer would be I spend my days writing stories, poetry or scoring songs.

Read more: Geoffrey J Fox

Andrew (Andy) Sorter

Andrew SorterName: Andrew (Andy) Sorter

Age: 25

Where do you call home? Casper, Wyoming

Education: Graduated high school with some college

What is your relationship status? Who do you live with? I am single and I live with my parents.

What's a typical day for you? A typical day for me is- depending on the day- sleeping in and enjoying time to myself, going to work at the sporting goods store I work in or going to therapy.

Read more: Andrew (Andy) Sorter

The Venter's

CheneName Chene Venter

Age 19

Where do you call home? Western Cape, South Africa

Education (degree(s): I am of high-school age, and interested in becoming a book editor (proofreader).

What is your relationship status? I live with my mom and my twin sister. I have two more sisters and a brother.

What's a typical day for you? A typical day for me is rolling down to the beach with my twin sister and my dog. I also like to exercise during the day (yoga, cycling). My sister and I also have parallel walking bars.

Read more: The Venter's
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