Accept Cookies?
Provided by OpenGlobal E-commerce

Please wait while your page loads ...


Meet the Community

You are not alone. The entire FA community, also known as the FAmily, is taking this journey with you. Meet a few of our dynamic people with FA below.  New Meet the Community interviews are posted every Monday, so be sure to visit often.  Please e-mail if you would like to be interviewed for a Meet the Community post.

FARA Ambassadors

The FARA Ambassadors are a group of people living with FA who are committed to supporting FARA in the search for a treatment and cure. They represent the community by speaking at events, meeting pharmaceutical partners, giving media interviews, and more.

Meet the FAmily!

Annika Venter

Annika Venter 2Name: Annika Venter

Age: 18

Where do you call home? I currently live in Cape Town South Africa.

Education: I am busy with my last year homeschooling.

What is your relationship status? I am single. I live with my twin sister and my mom.

What's a typical day for you? My day is very simple, I normally do school work, exercise, take my dog to the beach, go to physio and visit family and friends who live nearby.

Add a comment
Read more: Annika Venter

Kailey Newcity

Kailey Newcity copyName: Kailey Newcity

Age: 27

Where do you call home? Lake Charles, Louisiana

Education (degree(s): Bachelor of Science in Medical Assisting, but I cannot work in the field. I work as a check out receptionist (sit down job) at an Orthopedic Clinic part-time.

What is your relationship status? I have a boyfriend of 5 years who I live with. No kids.

What's a typical day for you? I work three days a week, do physical therapy twice a week, & see a chiropractor once a week.

How long have you known you are living with FA? I started having obvious symptoms 4 years ago & was misdiagnosed with Charcot Marie Tooth Disease in 2015. I found in February of this year that I actually have FA.

Add a comment
Read more: Kailey Newcity

Jade Brim

Jade BrimName Jade Brim

Age 28

Where do you call home? I live in Daytona Beach. FL.

Education (degree(s): I have a Master's in teaching. FA has led me many great places that have laid the foundation for my future. FA led me to the doctor's office where I met my husband. FA led me to an amazing career teaching math online.

What is your relationship status? I am happily married.

Add a comment
Read more: Jade Brim

Madelyn Frederick - MTC

MadelynName Madelyn Frederick

Age 19

Where do you call home? I was born and raised in Dallas, Texas and still live there.

Education: Ever since I was little I had dreams of becoming a teacher. When I was diagnosed with FA, I didn't think I would be able to achieve that dream. I knew it would be physically and mentally difficult but I am gonna do it. I am currently attending Collin College to get my degree in education.

What is your relationship status? I am currently a single, college student who lives with her parents and brother. I have an aspiring YouTube channel and am way too obsessed with blue bell peanut butter cookie dough ice cream. I have 2 older sisters and they both have some very adorable children. My brother is a senior in high school and wants to play baseball in college.

Add a comment
Read more: Madelyn Frederick - MTC

Kolby Draper

Kolby Draper 2Name: Kolby Draper

Age: 23

Where do you call home? I live in a small town in central Florida named Bartow.

Education/Degree(s); What is a current goal you have with your education? How will FA add to your future[career]? I currently only have a high school diploma, I went to Welch College in Nashville right after graduating but had a fall which resulted in a knee injury so I had to come home and could not complete any classes there. I have taken a few classes locally when I have been able to. I would love to and maybe one day plan to get a degree in Theology and another in Architecture, combining them to plant churches, build homes, orphanages, schools, and hospitals both locally and abroad. FA is holding me back from that but if (scratch that, when) a cure is found, that's what I want to do long term.

Add a comment
Read more: Kolby Draper
Page 8 of 30




Archived in
  the Ambassador Blog