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FARAFARA Cure FA

Meet the Community

You are not alone. The entire FA community, also known as the FAmily, is taking this journey with you. Meet a few of our dynamic people with FA below.  New Meet the Community interviews are posted every Monday, so be sure to visit often.  Please e-mail info@curefa.org if you would like to be interviewed for a Meet the Community post.
 

FARA Ambassadors

The FARA Ambassadors are a group of people living with FA who are committed to supporting FARA in the search for a treatment and cure. They represent the community by speaking at events, meeting pharmaceutical partners, giving media interviews, and more.

Meet the FAmily!


Marion Brossier

MarionName: Marion Brossier

Age: 24

Where do you call home? Bordeaux, France

Education: I have a degree in corporate management with a concentration in finance [STG (Science Technique et Gestion) option CFE (Comptabilité et Finances des Entreprises)], a license in trilingual communications [BTS (Brevet de Technicien Supérieur) AM (Assistante de Manager)], a certificate in accounting and administration [ASCA (ASsistante de Comptabilité et d'Administration)], and a certificate in European studies [PCIE (Passeport de Compétence Informatique Européen)].

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Alison Avery

Alison 2Name: Alison Avery

Age: I am 24

Where do you call home? I was born and raised in Tampa, FL. I've lived in North Carolina and New York City, but currently call Tampa home.

Education: I graduated from Elon University in May of 2016 with a bachelor's degree in Human Services Studies and minors in Business Administration, Psychology and Early Childhood Education.

How long have you known you are living with FA? I first had symptoms of FA when I was 15 and in high school. We were able to diagnose it very quickly because my sister also has FA and was diagnosed prior to me.

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Naomi Houghton

NaomiName Naomi Houghton

Age 24

Where do you call home? British Columbia, Canada

Education: I have a diploma in Occupational Therapist Assistant & Physiotherapist Assistant, FA will ultimately render me unable to perform my job as a rehabilitation assistant, but for now it has allowed me to build better rapport with my clients. I can now relate to their struggles and offer encouragement to them from a genuinely understanding place.

What is your relationship status? I live with my two best friends and greatest supports: Michael, my common-law partner, and Memphis, my Teacup Yorkie.

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Colton Watson and Family

Colton 3Name: Colton Watson

Age:10

Where do you call home? Littleton, Colorado

Education: 5th Grade

Who do you live with? I live with my parents, two older brothers, and dog Jaxon.

What's a typical day for you? I get ready for school, do my physical therapy exercises and stretches, go to school, come home and do homework, and then play video games or watch YouTube.

How long have you known you are living with FA? I went to the doctor in May and was officially diagnosed with a positive genetic test in July. I showed signs of balance issues for a couple years prior to that.

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Kyle Waterman

Kyle WatermanName: Kyle Waterman

Age: 20

Where do you call home? Cedar Rapids, Iowa

Education: I attend the University of Northern Iowa. I plan to major in Statistics and to minor in Finance. My ultimate goal is to do statistics for sports. FA has made it impossible to play sports, so I want to be involved in any way.

What is your relationship status? Do you have children? Single with no kids.

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