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FARAFARA Cure FA

Meet the Community

You are not alone. The entire FA community, also known as the FAmily, is taking this journey with you. Meet a few of our dynamic people with FA below.  New Meet the Community interviews are posted every Monday, so be sure to visit often.  Please e-mail info@curefa.org if you would like to be interviewed for a Meet the Community post.
 

FARA Ambassadors

The FARA Ambassadors are a group of people living with FA who are committed to supporting FARA in the search for a treatment and cure. They represent the community by speaking at events, meeting pharmaceutical partners, giving media interviews, and more.

Meet the FAmily!


Barry Risinger

Barry RisingerName: Barry Risinger jr

Age: 37

Where do you call home? The first state capital of Ohio.

Education (degree(s): G.E.D., 3 years of schooling for different art degrees.

What is your relationship status? I'm currently in a relationship with another FA'er. I have 15yr old daughter who has no sign of having FA. I currently share a place with my mom.

What's a typical day for you? I normally wake up take my vitamins and medicine then make a smoothie. After that, my day is filled with drawing, playing games, listening to music, and content creation.

How long have you known you are living with FA? It took me 10 years to get a definite diagnosis. I have had symptoms since I was 13.

Read more: Barry Risinger

The Dürr Family

Leila DurrName: Leila Dürr

Age: 14

Where do you call home? Pretoria, South-Africa

Education: 8th grade in Afrikaans Hoër Meisies Skool (An all-girls school)

Who do you live with? I live with my parents and my little brother Simon. We also have a big animal family at home.

What's a typical day for you? I go to school with my wheelchair or my walker and when I get to school I switch to my scooter. That's how I get to my classes. After school, I go home and do homework. Then I relax a bit by watching Youtube or reading a book. During the exams, I go to my friend's house to study when we have finished writing for the day.

Read more: The Dürr Family

Frank Sullivan

Frank SullivanName: Francis (Frank) Sullivan

Age: 69

Where do you call home? N. Billerica, Massachusetts (~20 mi. NW of Boston)

Education degree(s): AS/MIS Northeastern Univ.

What is your relationship status? Married 44 years; - 2 married daughters and 3 granddaughters.

Read more: Frank Sullivan

Christina Cordaro and Catherine Logan

Logan Siblings 2Name: Christina Cordaro

Age: 28

Where do you call home? I've lived in Philadelphia, PA, for the past 7 years, but I am from Bucks County, PA.

Education: I have received my Master of Business Administration in Hospitality Management and Bachelor's Degree in Hotel & Lodging Management, both from Johnson & Wales University. I currently work at The Bellevue Hotel, in the Unbound Collection by Hyatt. My career goal is to be a Director of Revenue Management.

What is your relationship status? I recently got married this past October to my husband, Justin! My immediate family includes my dad, mom, sister, Catherine (32) and brother, Matthew (17).

Read more: Christina Cordaro and Catherine Logan

Alison Love

Alison LoveName: Alison Love

Age: 46 years

Where do you call home? Paisley, Scotland

Education degree(s): BA (hons) Community and Youth Work

What is your relationship status? I am single (divorced) living on my own

Read more: Alison Love
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