Name: Sule
Age: 24 years old
Where do you call home? I live in Kayseri, Turkey.
Education (degree(s): I have a license in classroom teaching. I need to take one more exam for my job. I am also attending school.
Who do you live with? I live with my parents.
What's a typical day for you? I work all day long. First work, then studying. I admit it’s as tiring as it sounds, but I like to keep myself active.
Meet the Community
You are not alone. The entire FA community, also known as the FAmily, is taking this journey with you. Meet a few of our dynamic people with FA below. New Meet the Community interviews are posted every Monday, so be sure to visit often. Please e-mail
FARA Ambassadors
The FARA Ambassadors are a group of people living with FA who are committed to supporting FARA in the search for a treatment and cure. They represent the community by speaking at events, meeting pharmaceutical partners, giving media interviews, and more.
Meet the FAmily!
Sule
- Details
- Category: Meet the Community
Jean Walsh
- Details
- Category: Meet the Community
Name: Jean Walsh
Age: 59
Where do you call home? Northern Massachusetts
Education (degree(s): I have two master's degrees: one in community social psychology and the other in social work.
Who do you live with? I live with my husband of, gulp, almost 27 years and our two dogs. One is my sweet service dog Wendy and the other is our kind of obnoxious pet, Sadie.
What's a typical day for you? I am not working right now. I am trying to stay focused on being as healthy as I can. So a lot of the day is working out and trying to eat clean. But I also do FARA Ambassador things and am a member of my city’s Commission on Disability Issues trying to make my city accessible.
Kelly Gregory
- Details
- Category: Meet the Community
Name: Kelly Gregory
Age: 22 years old
Where do you call home? Central Minnesota
Education (degree(s): Associates Degree in Accounting
Who do you live with? I own a house with my husband
What's a typical day for you? 8-5pm work at a bank. Come home, 20-30min workout, supper, shower, relax, bedtime around 8pm
Talia Rodrigues Medeiros
- Details
- Category: Meet the Community
Name: My name is Talia Rodrigues Medeiros.
Age: I'm 24 years old.
Where do you call home? In the interior of Goiás, a town with few inhabitants called Gouvelândia.
Education (degree(s): My schooling is higher education, I have 2 degrees, in Law and in Pedagogy, where I had to go to another city many times without accessibility or comfort. I seek a specialization and work in Law. I see a contribution from AF in the possibility that I gained in putting myself in the place of others. Acting with excellence, I can contribute to the defense of the wronged and the formation of children in order not to see disability in a pejorative and restrictive way. As well as starting accessibility in a city where this is not common, in a state that is still retrograde and in a country that is still prejudiced.
Who do you live with? I have been in a stable relationship for two years and I live with my partner and pets.
What's a typical day for you? I wake up at 6:20 am, my mother comes to my house, helps me with organizing things for work, we go to work (we work in the same place), I return home at 11:15 am. My husband helps me with the medication and does the lunch for us. He puts me to bed, where I rest until 2 pm and start studying and work for extra income. I stay with my pets in my room until my partner arrives and helps me get dressed to go to the gym, around at 5:30 pm. I go to the gym but I first go to my parents' house to see my father who has early Alzheimer's and he is in the last stage of the disease. At 7:00 pm I leave the gym and I go to my mother’s house to take care of my social project for feeding animals that live on the street. I take a shower there and go back to my house at 20:00, more or less. When I get home, I feed my animals and take care of my collection of plants. At 10pm I have dinner, drink medicine and go to bed watching TV until I sleep.
Sirin
- Details
- Category: Meet the Community
Name: Şirin
Age: 21
Where do you call home? Niğde,Turkey
Education (degree(s): -OR- What is a current goal you have with your education? How will FA add to your future [career]? : I met Fa at the university and went to open teaching in the 2nd grade, it made me very sad, I only go to university for exams, now I'm studying 2 universities / child development and health management. My current goal is to become a civil servant.
Who do you live with? I live with my family.
What's a typical day for you? During the day I study for university exams. I study for civil service exams in the evenings. I play sports. I try to learn a new language. I attend trainings on social media and watch movies in my spare time.