FARA News

2010

Save the Date - November 13, 2010
Third Annual Friedreich's Ataxia Symposium
sponsored by The Children's Hospital of Philadelphia
July 13, 2010

FARA Annual Report 2009
July 6, 2010

Student Crowned Miss Wheelchair NH
June 25, 2010

Articles about Kyle Bryant and Team FARA in Race Across America:
"Iron Man Kyle" on Trike Asylum
and
Me, My Bike, and I - Notes from the RAAM Finish Line
June 24, 2010

The Yorktown Lions Club 7th annual golf outing raises money for research for Friedreich's Ataxia
June 11, 2010

FARA hosts Friedreich's ataxia Cardiac Summit on June 11th in Philadelphia
June 10, 2010

Team FARA in Race Across America on CBS 13 News
June 8, 2010

The Ride Of His Life - Kyle Bryant in Sactown Magazine
June 7, 2010

Team FARA - Race Across America - on channel 10 news
June 4, 2010

FARA is proud to announce two grant opportunities for Friedreich's ataxia research: The 2010 Kyle Bryant Translational Research Award and The Bronya J. Keats Award for International Collaboration in Research on Friedreich's Ataxia
June 3, 2010

Family of local boy raises money to benefit others
June 1, 2010

Pharma's Orphans - FARA in Pharmaceutical Executives Magazine
May 28, 2010

Repligen Receives Orphan Drug Designation from the FDA for RG2833 for Friedreich's Ataxia
May 24, 2010

Ride Ataxia Kicked off the 2010 ride series in Tampa - and spoke on NBC Daytime about Ride Ataxia and FARA
May 24, 2010

Events Across the United States Mark Friedreich's Ataxia Awareness Day
May 14, 2010

Repligen Files Investigational New Drug Application with FDA for First Drug Targeting the Core Genetic Defect of Friedreich’s Ataxia
May 13, 2010

Kyle Bryant interview with Pat and Tom on KNCI radio
May 10, 2010

FARA Congratulates Nygel Lenz on Receiving the 2010 Dean's Award from the University of South Florida
At the University of South Florida College of Medicine 2010 Commencement, on May 6, in Tampa, FL, Nygel Lenz, an advocate and leader in the ataxia community, received one of two Dean's Awards presented by USF Medical Dean Dr. Stepehn Klasko. Lenz spoke at a USF Health forum last fall about the challenges of living with Friedrieich's ataxia, a rare neuromuscular disorder. Friedreich's affects the body's ability to balance, as well as causing muscle weakness and other problems. Lenz was presented with the award "in recognition that patients are our best teachers".

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May 6, 2010

Good Day Sacramento Video about Team FARA in Race Across America
Kyle Bryant and his team are racing across the country in Race Across America from June 12-20, 2010.
May 4, 2010

Clinical Trial Update - Double-Blind, Randomized, Placebo-Controlled Pilot Study of Varenicline in the Treatment of FA
April 12, 2010

Billy Tauzin, President and CEO of PhRMA Address at the PhRMA Meeting on March 18, 2010
FARA is proud to share the video of the address of Billy Tauzin, President and CEO of the Pharmaceutical Research and Manufacturers of America (PhRMA), at the PhRMA meeting on March 18th, 2010, The presentation includes a beautiful and moving tribute to Keith Andrus and his legacy that continues to drive us forward. Mr. Tauzin is a champion for FA, Keith Andrus and all individuals with rare diseases as he challenges his colleagues in the pharmaceutical industry to make therapeutics for rare disease a high priority.
March 29, 2010

Standing up for those who can't   20 students and teachers from North Branford High School confined themselves to a wheelchair to raise money and awareness
Teens experience life in wheelchairs
March 26, 2010

PhRMA Honors Patient Advocates Ron and Raychel Bartek
March 18, 2010

"Demystifying Medicine" - featuring Drs. Tracy Rouault and Kenneth Fischbeck along with Tom Trovinger, FA Patient and Jen Farmer, FARA Executive Director
March 18, 2010

FARA Congratulates Melissa Phares, ChairScholar Award Winner
ChairsScholars.org
March 18, 2010

We can fight Friedreich's with research
March 13, 2010

FARA Announces the 2010 Ataxian Athlete Initiative
2010 Ataxia Athlete Initiative Submission Requirements
March 10, 2010

FDA Expands Commitment to Patients with Rare Diseases
February 26, 2010

Crusade for a Cure
February 23, 2010

Registration opens for Ride Ataxia NorCal
February 15, 2010

Registration is open for Ride Ataxia Tampa Bay
February 12, 2010

Neurology Now - Friedreich's Ataxia
This article just came out in Neurology Now, a publication of the American Academy of Neurologists. This publication is sent to neurologists offices around the country and distributed in waiting rooms and offices. The article focuses on one approach to therapy that FARA has been supporting, HDAC inhibition. The article is not comprehensive, it does not review all of the potential therapies, however it does recognize the promise and progress of FA research, specifically HDAC inhibitors, and highlights the work of Dr. Joel Gottesfeld, a FARA funded researcher.
February 11, 2010

National Ataxia Foundation - Annual Membership Meeting
Chicago, IL   March 12-14, 2010
February 8, 2010

Classmate's disorder leads to school effort
Students, staff navigate Perrysburg High School halls in wheelchairs
WNBC Channel 24
Channel 13 News    (midway through video)
February 7, 2010

Repligen Corporation F3Q10 (Qtr End 12/31/09) Earnings Call Transcript
February 5, 2010

Team FARA Races Across America to Raise Awareness for Friedreich's ataxia
February 4, 2010

Announcing New FARA Logo
February 1, 2010

Viper Swimmer's Courageous Story.  Preston Lynch competes in swimming while dealing with Friedrich's ataxia
January 28, 2010

Keith Michael Andrus:  12/21/1985 - 01/22/2010
January 23, 2010

Penwest Announces Initiation of Phase IIa Clinical Trial of A0001 in Patients with Friedreich's Ataxia
January 11, 2010

Apply Now! - FA Community offered access to National Scholarship Program for Students with Disabilities.
ChairScholars National Scholarship Program provides eligible high school seniors and college freshmen up to $20,000 for tuition to attend the college or university of their choice.
  Additional Information
  Application
January 4, 2010