Accept Cookies?
Provided by OpenGlobal E-commerce

Please wait while your page loads ...

Contact

Friedreich's Ataxia Research Alliance


Contact

Main Office:   533 W Uwchlan Ave
Downingtown, PA 19335 USA
Phone: (484) 879-6160
Fax: (484) 872-1402
 
Virginia Office:   PO Box 1537
Springfield, VA 22151 USA
 
Email:   info@curefa.org
 

Subscribe to our e-Mail List for Monthly Updates

Your connection to the Friedreich's Ataxia Research Alliance

To receive future FARA Monthly Updates, please click below to subscribe.
You will receive FARA's Monthly Update emails. The Monthly Update is a digest of FARA news including enrolling clinical trials, research grants funded, advocacy initatives, and upcoming events.

Financials

FARA feels a strong responsibility to be good stewards of the funds entrusted to us. Charity Navigator, America's largest and most influential charity rater on financial health, accountability and transparency and results reporting, has rated FARA with their highest rating of 4 stars for 9 years. Only 2% of charities evaluated have maintained at least 9 consecutive 4 star ratings.

FARA's most recent financial documents and donor policies can be accessed below.

Can't see this document? Click Here


Can't see this document? Click Me


View the 2017 Annual Report

Can't see this document? Click Here


Can't see this document? Click Me

 

 

Can't see this document? Click Here


Can't see this document? Click Me

 

 

+ Donor Bill of Rights
+ Donor Privacy Policy
+ Corporate Relations Policy
+ State Nonprofit Disclosures

FARA Ambassador Program

The FARA Ambassadors are a united team of patient volunteers living with FA who are committed to supporting FARA in the search for treatments and a cure.

The Ambassadors are a service team within the FARA organization. Participants in the FARA Ambassador Program are passionate about building and upholding relationships within the FA community. Together we seek to know more about the research and pharmaceutical pipelines being developed through FARA in order to be better prepared to represent the FA community when opportunities arise to educate the medical community and potential donors. When meeting with scientific groups, pharma partners, and the FDA, our purpose is to promote awareness of the patient perspective of living with FA. We believe our dedicated support is key to continued success toward our ultimate goal of treatments and a cure.

FARA Ambassador Program Mission Statement:

The FARA Ambassadors are positive, supportive, peer representatives for the FA community, actively raising awareness and funds for FARA. To learn more about the FARA Ambassador Program or to have a FARA Ambassador speak at your event, please contact: info@cureFA.org.

This is where I would expect a link to the Ambassadors Biographies. This could be set-up as a category blog layout in this spot also. Since each biography is actually a categorized article, this would be the preferred solution from my end.

Monthly Updates

Upcoming Events

 

Join us on
 an Upcoming Ride


  • rideATAXIA SoCal
    Saturday, February 22, 2020
    17815 Pacific Coast Highway, Huntington, Beach CA 92649


  • rideATAXIA Dallas
    Saturday, March 28, 2020
    3940 N Elm Street Denton TX 76207


  • rideATAXIA NorCal
    Saturday, May 30, 2020
    Winters, CA


  • rideATAXIA Chicago
    Sunday, July 12, 2020
    Channahon Central Park 24856 West Eames Street Channahon, IL 60410


  • rideATAXIA Philly
    Sunday, October 11, 2020
    Montgomery County Community College, 340 Dekalb Pike Blue Bell, PA 19422


 

Join us at
 a Grassroots Event


  • FArm to Table
    Saturday, February 29, 2020
    Buti T Ful Farms 4101 Mud Lake Rd, Plant City, Florida 33567


  • Hope for toMORROW 2020
    Saturday, March 7, 2020
    Bryn Mawr School, 109 W Melrose Ave, Baltimore, MD 21210


  • A Night to Fight FA: Round 4
    Saturday, April 4, 2020
    Akerson Tower, Navy Marine Corps Memorial Stadium, 550 Taylor Ave, Annapolis, MD 21401


  • N.J. Seaside Stride
    Saturday, May 16, 2020
    Tri-Boro First Aid Squad, 61 J St, Seaside Park, NJ 08752


  • Cure FA Soiree
    Saturday, May 16, 2020
    Edmond Conference Center, 2833 Conference Dr. (Covell & I-35) Edmond, OK 73034


 

Team FARA
Upcoming Events


 

Energy Ball
Upcoming Events


Latest Posts From Our Blogs

Subscribe to
the Ride Ataxia Blog

Get new posts from the Ride Ataxia Blog sent directly to your inbox


 

 

Archived in
  the Ride Ataxia Blog


Subscribe to
the Team FARA Blog

Get new posts from the Team FARA Blog sent directly to your inbox


 

 

Archived in
  the Team FARA Blog


Other Areas of Interest

 

Clinical Trials



Clinical Trials - Active - Enrolling

Clinical Trials - Active - Enrollment Closed

Clinical Trials - Completed

 

Tagged in
FARA Scientific News


Page 1 of 3

SHARE

FacebookTwitterLinkedInYoutube
michelle-h.jpg

News & Press Archives

Site Map     Privacy Policy     Service Terms     Log-in     Contact     Charity Navigator