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Advocacy 101: Jump In

Here are some great opportunities to fulfill that New Year's resolution to get more involved in advocacy! 2019 is off and running with great programs happening throughout the country. Most are free and some you can even watch from the comforts of your own home!

Feb 1
RARE PA – NORD's Rare Action is holding a Pennsylvania Patient Advocacy & Orphan Drug Workshop in Allentown, PA

Feb 7
NORD Webinar: Rare Disease Day & Ways to Get Involved

Feb 14
Everylife Webinar on Rare Disease Week

Feb 23
RARE AR – NORD's Rare Action is holding an Arkansas Patient Advocacy & Orphan Drug Workshop in Little Rock, AR

Feb 24-27
Everylife is sponsoring Rare Disease Week in DC. Many activities to chose from and some will be webcasted!

Feb 28
Rare Disease Day 2019 at National Institute of Health, Bethesda, MD – live and webcast

Mar 9
RARE CA – NORD's Rare Action is holding a California Patient Advocacy & Orphan Drug Workshop in Sacramento, CA

Mar 30
Rare on the Road - Everylife & Global Genes are holding a workshop in Boston, MA

May 4
Rare on the Road - Everylife & Global Genes are holding a workshop in Birmingham, AL

May 18
Rare on the Road - Everylife & Global Genes are holding a workshop in Denver, CO

June 21-23
NORD Living Rare, Living Stronger will be held in Houston, TX and here is a sneak peek at the agenda

July 13
Rare on the Road - Everylife & Global Genes are holding a workshop in Sioux Falls, SD

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About the Author

Jen Farmer

Jen Farmer

Executive Director

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