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North Branford siblings speak-out about growing-up with devastating disabilities


NORTH BRANFORD, Conn. (WTNH) - A North Branford mom, and her two kids, are raising awareness about what it's like to grow-up with a disability. Both Sam and Alex Bode have Friedreich's Ataxia which causes progressive damage to the nervous system.

"For eight years - 7 years and 10 months, they were just like everybody else," said Mary Caruso, explaining that her two children were active, riding bikes and playing with friends. "I started noticing subtle things like going through a doorway was difficult... walking straight was difficult. Sam’s gait was starting to go off."

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Felicia DeRosa

Felicia DeRosa

Fundraising & Communications Program Director

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