Congratulations to FARA's Founder and President Ron Bartek on receipt of "The Abbey"- an award for Lifetime Achievement for the Rare Disease Community. Ron was honored in the Patient Advocacy category and received the award at the RareVoice Awards Gala hosted by the Rare Disease Legislative Advocates. He is pictured here with Dr. Stephen Groft who was also honored with the same award in the Government Agency category for his dedication to stimulating research and advancing development of therapies during his tenure at the Food and Drug Administration (FDA) and National Institutes of Health (NIH). Congressman Fred Upton, sponsor/author of the 21st Century Cures Act, also received the Lifetime Achievement Award in the Member of Congress category.
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