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FARAFARA Cure FA

Vice - President and Chief Executive for Science

Job Title: Vice - President and Chief Executive for Science

Overview The Friedreich’s Ataxia Research Alliance (FARA) is a world leader in supporting scientific research leading to treatments and a cure for Friedreich’s Ataxia and related conditions. Fried reich’s ataxia (FA) is a debilitating , life - shortening , degenerative, neuro - muscular disorder characterized by loss of coordination in the arms and legs; energy deprivation; impairment of vision, hearing, and speech; aggressive scoliosis; diabetes, and a s erious heart condition. Our mission is to marshal and focus the resources and relationships needed to cure this disease by raising funds for research, promoting public awareness, and aligning scientists, patients, clinicians, networks, government agencies, pharmaceutical companies and other organizations dedicated to curing FA and related diseases. We are seeking a goal - oriented professional with commitment to FA research to oversee and enhance our scientific programs and partnerships and to ensure that ou r strategic research priorities are efficiently and effectively advanced.

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