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FARA
Cure FA
News & Press ReleasesHere you will find the most recent organizational news from FARA, including information on events, and awareness and advocacy initiatives. To locate an article from a certain date, please use the archives on the right side of your screen.
It's the race for "Matt and Grace"
The ninth annual Friedreich's Ataxia Research Alliance 5-K is just around the corner.
Race for "Matt and Grace" starts at Rhode Island College this Saturday.
Read more HERE
NEW YORK — Celebrity typically comes with a privileged existence. It also delivers power, which could be used to do good deeds throughout the world.
As global stars, many tennis players embrace the responsibility of charitable involvement and work to raise money for a variety of causes. Almost every top player you can think of — Serena Williams, Rafael Nadal, Roger Federer, Novak Djokovic, Sloane Stephens, and many others —- have foundations stamped with their names in front.
For the most part, players tend to show a preference toward charitable endeavors to help socio-economically disadvantaged children, and often combine the focus of education and sport.
Read more HERE
SUPER SPECIAL SUPPORTERS: John Jasparro (front left) accepts a framed flag from the first-ever Matt and Grace Golf Tournament from JHS Athletic Hall of Famer Matt DiIorio during Tuesday’s moving meeting at JFD Headquarters on Atwood Avenue. Taking part in the presentation was, from left: David Iannuccilli, Jon Pistacchio, Sally and Jack DiIorio, Richard Boehm, Dave Pingitore, Keith Calci and John Graham. (Sun Rise photos by Pete Fontaine)
Read more HERE
The Friedreich’s Ataxia Center
of Excellence at Children’s Hospital of Philadelphia is pleased to present this one-day symposium
providing patients and families with up-to-date clinical information on therapeutic approaches and
current research being conducted in the field of Friedreich’s ataxia.
Click Here for Registration Instructions.
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DOWNINGTOWN, PA-- The Friedreich's Ataxia Research Alliance (FARA) in partnership with the Burrows Hill Foundation (burrows-hill.org) have partnered once again to distribute adaptive cycling equipment through Ataxian Athlete Initiative (AAI). The AAI is a unique program serving people with ataxia who have demonstrated a strong desire to stay healthy and fit despite their progressive disabilities.
Friedreich's ataxia (FA) is a rare disease that affects balance and coordination and has symptoms such as vision and hearing loss and often results in life-shortening heart complications.
This year, the AAI was sponsored by Catrike, UVA Sun Systems, The Texas Irish Foundation and The Burrows Hill Foundation. The Burrows Hill Foundation generously provided over 80% of the funding for the 2018 AAI.
2019 (10)
2018 (20)
2017 (17)
2016 (29)
2015 (38)
2014 (53)
2013 (69)
2012 (33)
2011 (31)
