The Tampa Bay Lightning honors Paul and Suzanne Avery as Lightning Community Heroes of the year
News & Press Releases
Here you will find the most recent organizational news from FARA, including information on events, and awareness and advocacy initiatives. To locate an article from a certain date, please use the archives on the right side of your screen.
The Tampa Bay Lightning honors Paul and Suzanne Avery as Lightning Community Heroes of the year
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Agilis Biotherapeutics Completes $8 Million Financing to Develop DNA based Therapeutics
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Friedreich’s Ataxia Research Alliance honors Clear Channel Outdoor as Media Partner of the Year
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December 5, 2013 — The Friedreich’s Ataxia Research Alliance (FARA) presented their 2013 Media Partner of the Year Award to Mike Barbaro and Clear Channel Outdoor on Thursday, November 21, 2013.
Barbaro and Clear Channel Outdoor utilized their resources to provide FARA with a dynamic out-of-home media platform to raise the profile of Friedreich’s Ataxia and encourage involvement by providing multiple digital billboards in seven key cities, including: Tampa, Orlando, Philadelphia, Chicago, Dallas, Portland and Sacramento.
Friedreich’s Ataxia Research Alliance recognizes the Tampa Bay Lightning as Partner of the Year
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December 5, 2013 — The Friedreich’s Ataxia Research Alliance (FARA) proudly presented their 2013 Partner of the Year Award to the Tampa Bay Lightning and chief executive officer Tod Leiweke on Wednesday, November 20, 2013.
“FARA recognizes that collaboration and partnership are absolutely essential for success,” cited Jennifer Farmer, FARA Executive Director. “The Tampa Bay Lightning has gone above and beyond to help further our mission to find a cure for Friedreich’s Ataxia. Their personal and professional commitments have brought us closer to the finish line and inspired hope in many.”
- Ace For A Cure with John Isner raising funds for FA research
- North Branford shopping event Dec 7th to fight rare disease
- Coming Together for a Cure - 8th Annual Stephanie's Hope Holiday Boutique
- FARA earns the highest rating (4 Stars) from Charity Navigator for the 4th consecutive year!
- USF is currently recruiting FA patients for a study of EPI-743 in Friedreich's Ataxia Point Mutations