Kyle Bryant is in day 9 of a 2,800-mile bike ride to raise awareness and research funds to help find a cure for the rare neuromuscular disorder, Friedreich's ataxia (FA), with which he and thousands of other Americans are affected.
Bryant launched his courageous trip from The Scripps Research Institute in La Jolla, California, on January 22 — his ears ringing with applause and shouts of encouragement from appreciative FA patients and the Scripps scientists making encouraging progress toward treatments and a cure for his disease.
Kyle plans to spend tomorrow, day 10 of his ride, in Phoenix, where a number of families are affected with Friedreich's ataxia and with other forms of ataxia as well. Bryant looks to finish his ride in Memphis, Tennessee, in time to help open the annual meeting of the National Ataxia Foundation on March 22nd.
"I'm one of the lucky ones that can still get around, but there are a lot of people that are affected by this disease," says Bryant. "I'm trying to do something extreme to raise awareness, just because no one knows about it."