News & Press Releases
Here you will find the most recent organizational news from FARA, including information on events, and awareness and advocacy initiatives. To locate an article from a certain date, please use the archives on the right side of your screen.
Update your FARA Patient Registry Account Today!
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FA Symposium at Children's Hospital of Philadelphia Save The Date - Oct 8, 2012
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Interview with Kyle Bryant about Ride Ataxia and the Energy Ball
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An inspiring young man diagnosed with a deadly disease, with no known treatment and no cure, is not letting that kill his spirit. How to help raise money on this disease by taking a little ride.
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Friedreich's Ataxia Awareness Day is Saturday, May 19th- Meet a Few of the Faces of Friedreich’s Ataxia
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St. Catherine’s Annual Jog-A-Thon Supports Research for Friedrich’s Ataxia
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St. Catherine’s Academy, a Catholic school in Orange County, will hold its annual Jog-A-Thon on Thursday, May 17, 2012 at 1:00 p.m. at the school’s campus in Anaheim. Now in its 13th year, the event supports the Friedreich’s Ataxia Research Alliance (FARA).
Coach Greg Jones began organizing the Jog-A-Thon when Chelsea, a close friend of the SCA Family, was diagnosed with Friedreich’s Ataxia at age 5. Now 19, Chelsea struggles with the disease but remains cheerful and loving because of her strong sense of hope. Chelsea is expected to attend the Jog-A-Thon this year if her health allows.
In the weeks leading up to the Jog-A-Thon, students at this Orange County Catholic school learn about the disease in their classes, motivating them to run for this important cause. “There are no prizes or medals for SCA cadets in this venture, but a win for Chelsea and Friedrich’s Ataxia research,” says Jones. The entire student body, grades kindergarten through eighth, will participate in the event. As in previous years, Sisters, teachers, and parents are likely to join in. Last year, students raised over $3,000 for FARA.
Read More: St. Catherine’s Annual Jog-A-Thon Supports Research for Friedrich’s Ataxia