Fara
About Fara
Research & Clinical Programs
Patient & Family Resources
Ways to help

"I am confident that the scientists, doctors, and researchers are pulling out all the stops on the way to a cure.  Until then, my friends, family, teammates, and I plan to have a lot of fun and push ourselves to fight this disease together." 

Kyle Bryant
Founder of Ride Ataxia
California

Ways to help

Raising Awareness

Social Networks | Letter Writing Campaigns | Community Awareness | Media

One of the challenges for individuals with FA and for FARA is that FA is a rare disease. The general public is usually unfamiliar with it and does not know how to help. There are a lot of ways to increase awareness within your immediate network and beyond.

Social Networks

Spread the word about FARA through your online social networks and friends. By listing FARA as a charity you champion in an online application, you help to raise awareness and gain new supporters. Many of the social networking sites will allow you to add a personal badge, which you can create through Network for Good.
Create your own badge

A few common networks used today are:
Letter Writing Campaigns

A letter writing campaign can serve several purposes. It gives you an opportunity to raise awareness about FA and explain to people how they can help. The most successful campaigns start with sending letters to your family, friends, colleagues, business associates, etc. Often, people want to help but they do not know how and are afraid to ask. Letter writing campaigns can bridge this gap. Click here for some template letters and suggestions to help you get started: Letter Writing Campaign template.

Community Awareness

You can raise awareness about the nature of FA and the work FARA is doing to raise funds for research by speaking about it in your community (school, church, library, place of employment). Such speaking engagements can also create opportunities to grow the FA community’s network of support. Much of FARA’s success and speed of research is credited to collaboration and networking in the scientific and patient communities as well as with related disease groups.

If you are interested in raising awareness, consider joining the speaker's bureau being formed by FARA. This group will be dedicated to providing information about FA and educating members of the community about all aspects of FA. If you are interested in taking part in the speaker’s bureau, please contact info@cureFA.org.

Media

Media outlets such as newspapers, magazines, television, and radio allow us to reach an even broader audience. If you have a personal or professional connection to such outlets, we welcome the opportunity to work with you in communicating information about FA and FARA to the general public. Contact info@cureFA.org.