The Friedreich's Ataxia Research Alliance (FARA) is dedicated to the pursuit of scientific research leading to treatments and a cure for Friedreich's ataxia. For research, development and clinical scientists driven to be part of a successful, innovative, and collaborative research community, FARA is a source of funding, resources, and individualized connections that accelerate progress and results. FARA’s formal support for this community is demonstrated by our grant program, scientific conference program, patient registry, and the clinical network. FARA is also accessible and responsive to individual inquiries from scientists for requests such as the identification of collaborating investigators, acquiring the appropriate mouse models, or to disseminate information to the patient community.
FARA can assist physicians and other healthcare providers treating individuals with FA by:
- Connecting them to FA specialists to help instruct best care management for patients
- Helping them get their patients registered in the FA patient registry
- Providing information on active clinical trials
- Assisting with patient referrals to network centers running clinical trials
Our goal is to support the FA scientific and medical community with the tools to execute their best work and improve patient outcomes.