My feet were clipped securely into the pedals and my helmet was snug on my head. Friends and family in attendance flanked me in our army green tees.
“The Fellowship of the Ride” was my team name, displayed in gold on the front of our shirts. On the back was a J.R.R. Tolkien quote from the first book in The Lord of the Rings trilogy, “Faithless is he that says farewell when the road darkens.”
The rideATAXIA in Dallas on April 1 was the first event I attended within the FA community. Bearing a rare disorder such as Friedreich’s ataxia tends to be isolating. As physical limitations gradually increase over time, we sufferers are left feeling alone. “No one understands me,” I think, more times than I should.
Having melodramatic thoughts like this may not be common among all people with FA, but it sometimes is for me.
I think that the greatness of this event in Dallas lies not in the ride itself, though riding my recumbent trike for three miles was indeed a huge and fulfilling accomplishment; I hadn’t used my legs much in over a decade until I purchased my trike a year ago. Honing your abilities in a world of disability is unspeakably rewarding.Add a comment