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FARAFARA Cure FA
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rideATAXIA Blog

In January 2007, rideAtaxia was born when Kyle Bryant and his father began their 2,500 mile, 60 day cycling journey from San Diego to Memphis, TN to raise awareness and funds for FA research. Now functioning as a program of the Friedreich’s Ataxia Research Alliance (FARA), rideATAXIA offers single day, challenging and family fun bike rides at locations all across the USA. From firsthand accounts of Kyle’s inaugural journey to the most recent news about our annual bike rides, the evolution of rideAtaxia is chronicled in this blog.

 

Trek to Work

 

I rode to work the other day. It has cooled down a lot around here, I actually had to wear long sleves in the morning.

I got up at 6 and met my good friend and co-worker, Tess, at her house. We rode through town and on to the American River parkway. It is about 15 miles one way to my office aned most of it is on the trail so we don't have to deal with traffic. It takes a little over an hour but it is a great way to wake up in the morning and a nice way to work off steam at the end of a long day.

I try to ride to work once a week but I need to increase the frequency so I can get experience with back to back days.

 

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Some of the Many Reasons

 

 

 

From the time we were convinced that something was wrong, it took us (my family and I) over a year to find the answers we were looking for. My Dad noticed that my skills were deteriorating in sports, specifically baseball. So he convinced my Mom and I that something was truely wrong. We went to a neurologist once a week for a while so he could run all kinds of tests, he had no idea what was going on. Many doctors, many wrong diagnoses and many months later, we found a doctor who took one look and knew right away that I have Friedreich's Ataxia...

Nobody knows about Ataxia (even doctors as I found out), that is why I am riding across the country, this disease needs some attention. It is estimated that one in every 50,000 Americans has Friedreich's Ataxia, yet nobody even knows about it.

I am also doing this beause I am one of the lucky few Ataxians who can still get around without the use of a wheelchair. The ability that I have will be gone at some point, I feel an obligation to do as much as I can while I still can.

 

 

 

 

 

 

 

 

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Ride Ataxia Events: Golf Tournament

 

Fundraiser outcome...Overwhelming
For those of you who participated in the golf tournament, thannk you. It was a huge success, raising $9,800. This money will fund my ride and then some. I will donate the "and then some" to FARA.

For those who did not attend here is a brief rundown: 24 teams of four, 28 hole sponsors, and 150 people at dinner that night. I think everyone I know was at dinner that night. Everybody stuck it out through tripple digit herat and had a great time.

Thank you to all the great people at Lake of the Pines and the surrounding community, you have built something great, keep it up!







 

 

 

 

 

 

 

 

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First Post

 

 

First post...

My fundraiser is coming together. I have been thinking about ths thing for about 9 months now. I have to wait another 6 until I leave and then another 2 until I reach Memphis. I am pretty stoked, I want to leave tomorrow.

I have been training quite a bit lately, trying to ride during the week and riding 60+ miles on the weekends. I rode my first century ride on May 7 in a fundraiser for the American Diabetes Association. It took me about 9 hours due to a flat tire and a wrong turn. I was the last one on the course, but I finished.

I am planning on averaging 60 miles a day for almost 2 months. Its going to be very challenging but its gonna be a blast...more details later.

 

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Saturday Ride

 

 

I went on a ride yesterday from my apartment in downtown Sacramento to Nimbus Dam in Folsom (45+ miles round trip). The most current heat wave has passed and temperatures are in double digits again so it is safe to train in the afternoons.

This ride took me a little longer than it should have because I havent been training very heavily in the past couple of weeks. It has been too hot to go outside. However the heat wave is over for now and I am going to try to train hard until the next wave...

Me, halfway through my ride with Nimbus Dam and the American river in the background:

 

 

 

 

 

 

 

 

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