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rideATAXIA Blog

In January 2007, rideAtaxia was born when Kyle Bryant and his father began their 2,500 mile, 60 day cycling journey from San Diego to Memphis, TN to raise awareness and funds for FA research. Now functioning as a program of the Friedreich’s Ataxia Research Alliance (FARA), rideATAXIA offers single day, challenging and family fun bike rides at locations all across the USA. From firsthand accounts of Kyle’s inaugural journey to the most recent news about our annual bike rides, the evolution of rideAtaxia is chronicled in this blog.

 

Ride Ataxia 2013 Reflection

This article is from The Advocate newsletter.  Read the entire newsletter here:  http://curefa.org/_pdf/FARAnewsletterDec2013.pdf

Young Family’s Involvement Is A Team Effort

At Ride Ataxia Chicago 2013, the Young family recruited the largest team in Ride Ataxia history. Team Emily consisted of 76 riders from their central Illinois hometown of Gibson City, which has a population of about 3,400. “We have been here our whole lives and have made some amazing friends so we are able to bring together a lot of people for the ride,” says Emily’s mom, Becky Young.

The strong community support goes beyond the impressive team numbers. “It is important for Emily to know that she has support. We have not been going through this on our own. When you are first diagnosed you go through that period of shock and disbelief. Then it has time to absorb and it just makes you realize how important today is — we try to live for today. After we let it sink in we decided we want to be proactive and that’s what led us to FARA.”

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Ride Ataxia Remembers Garrett Timbie

Ride Ataxia's success is rooted in many families coming together as one team to ride and raise funds for FA research. At the heart of each family is someone who rallies the family members to action. The family volunteers to scout ride routes; they train for long distances; they fundraise and they get up before dawn to staff the first rest stop. They enthusiastically participate to do their part in changing the research landscape for Friedreich's ataxia. One such family is the Timbie Family, and they do it out of love for their son, brother, nephew, cousin, and friend- Garrett.

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Announcing the 2013 Ataxian Athlete Initiative Grant Recipients

The Friedreich’s Ataxia Research Alliance (FARA), in partnership with The FA Project, Catrike, The Texas Irish Foundation, and UVA Sun Systems are pleased to announce the 2013 Ataxian Athlete Initiative (AAI) grant recipients. The AAI provides adaptive cycling equipment to people with Ataxia who have demonstrated the desire to stay active and healthy despite their disabilities. Friedreich’s ataxia (FA) is a rare, progressive and life-shortening neuromuscular disease for which there is currently no cure.

The AAI is managed by Ride Ataxia, a FARA program with a mission to promote active lifestyles among FA patients through cycling events across the United States geared towards raising awareness and much-needed research funds. The 2013 AAI was funded by The FA Project, Catrike, UVA Sun Systems, The Texas Irish Foundation, and a donation in memory of Gladys Lacativo.

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Ataxian Athlete Initiative Now Accepting Applications for 2013 Grant Program

For Immediate Release 

Rare Disease Organization to Provide Adaptive Cycling Equipment to Deserving Applicants 

Downingtown, Penn.,(April 8, 2013) – The Friedreich’s Ataxia Research Alliance (FARA),an organization dedicated to accelerating research leading to treatments and a cure for Friedreich’s ataxia (FA) has issued a “call for applications” for the 2013 Ataxian Athlete Initiative (AAI).

The AAI is a grant program that provides funding for equipment that enables eligible inpiduals with Ataxia to start or further develop their abilities in adaptive cycling. The AAI has empowered 14 inpiduals through adaptive cycling since 2009.
 

The AAI is managed by Ride Ataxia, a FARA program with a mission to promote active lifestyles among Ataxia patients through nationwide cycling events designed to raise awareness and much-needed research funds for FA. FA is a rare, progressive, life-shortening neuromuscular disease for which there is currently no cure.

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Rider Profile: Mark

Name: Mark Solow               

Hometown: Tulsa, OK

Current Location: Highland Village, TX

Age: 55 (will be 56 by the ride)

Occupation:  Sales.  (I sell network television time to ministries and humanitarian organizations.)

Club: Pathfinders Fun Cycling  (facebook.com/cyclehighlandvillage)

About you in your own words:  I’m an organizer.  Love putting (different) weekly rides together for all skill level riders.  I love dogs and usually pull at least one behind my (Trek FX 7.5) hybrid bike.  I love my carbon roadie too, but I can’t pull a trailer behind it.  I’ve got three (grown) kids.  My youngest is still in college and rides a fixie to class most days and pulls a pedicab behind his mountain bike on weekend to earn extra money.  He’s the one that got me into cycling when he came home from college with his new fixed gear bike and asked me to ride bikes with him.  The last time he asked me to ride bikes with him was when he was in elementary school!  My 40 year old 10-speed hadn’t been off the ceiling hooks for 10 years.  But, the Dawes Galaxy still worked.  Off we went, and I loved it so much, that I’ve ridden almost every day since (Aug. 2010).

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