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FARAFARA Cure FA

Health-related quality of life in children with Friedreich ataxia

The use of health-related quality of life scales as outcome measures in clinical trials is increasing. Although such measures have been validated in adults with Friedreich ataxia, they have not been studied in children with this disorder. The health-related quality of life of children with Friedreich ataxia was assessed using the PedsQL 4.0 Generic Core Module and Multidimensional Fatigue Scale. The scores from the Friedreich ataxia cohort were compared to those of control groups (children without a chronic disease). 

Health-related quality of life in children with Friedreich ataxia

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Jen Farmer

Jen Farmer

Executive Director

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