Family Support & Resources
Internet Support Groups
| FAPG Support Group The Friedreich's Ataxia Parents Group (FAPG) is a closed list, limiting subscriptions to parents & guardians of children with Friedreich's Ataxia (or other childhood onset ataxias). From all over the world, parents who are having similar experiences raising children with FA communicate with one another. |
| FA_babelFAmily FA_babelFamily is an independent multilingual mailing-list born in order to become a source of information for all people coping with Friedreich's Ataxia in Europe and worldwide. All messages dealing with what is being done in the field of scientific research and fund-raising in order to reach a cure for FA are particularly appreciated. |
| INTERNAF INTERNAF is an international e-mail based forum to exchange information and support for those who are diagnosed with ataxia. Open to patients, families and friends. |
Athletic Resources
| Adaptive Sports DS/USA offers nationwide sports rehabilitation programs to anyone with a permanent disability. Activities include winter skiing, water sports, summer and winter competitions, fitness and special sports events. |
| Road ID Bracelet Road ID Interactive is an ID bracelet that allows you to build a fully updateable, secure Emergency Response Profile (ERP) that is available to first responders via telephone and internet. |
| Challenged Athletes Foundation Established in 1997, the Challenged Athletes Foundation (CAF) is a unique organization that recognizes the athletic greatness inherent in all people with physical challenges and supports their athletic endeavors by providing grants for training, competition and equipment needs. |
School Resources
| Sample Kids Information Sheet |
| Sample Class Presentation - Zac |
| Sample Class Presentation - Alec |
Print Resources
| THERE'S NOTHING WRONG WITH ASKING FOR A LITTLE HELP... and other myths By Dave Lewis, a memoir of his life with Friedreich's Ataxia |
For a list of additional voluntary organizations that offer support for Friedreich's ataxia patients worldwide, please visit the Partners page.