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FARAFARA Cure FA

Boston Marathon 2015

The Boston Marathon is the world's oldest annual marathon and ranks as one of the most prestigious road racing events. This year was the 119th!

Jeff Morgan is my cousin but more like a brother. This was his seventh Boston Marathon, second time running for Team FARA, and first time I was able to attend. It was a bitterly cold, rainy, and windy day but that didn't stop Jeff or the 30,000 others running with him. It also didn't stop the thousands of spectators from lining the streets and cheering them on. The excitement of being in the crowd and waiting to catch a glimpse of Jeff was such a wonderful experience. Jeff raised $1,400 for FARA, raised awareness to the crowds who saw his Team FARA jersey, and made his cousin very proud and thankful to have such loving family.

 

 

 

 

 

 

From two members of Team Mullaney Munchkins...

This was my first Boston marathon and I'm hoping it won't be my last. It was one of the best experiences of my life. I instantly fell in love with the crowd and had a huge grin on my face from start to finish. Boston is an unbelievable city and it is evident as the Boston crowds line the streets from Hopkinton to Boston. Everyone lets loose. They yell, scream, applaud, stomp and high-five.Over the course of 26.2 miles, spectators of all ages offer gifts of orange slices, ice cubes, Vaseline sticks, popsicles, and cups of water. Boston's Olympian size roar gives you the courage that you are not in this alone. 

In January, when I first started training I said I would run this race to benefit Friedreich's Ataxia. Two of my very close family friends, Kaela & Joey Mullaney, battle with Friedreich's Ataxia everyday. The way these two live life is an inspiration in itself. Their attitude and love for life has taught me that anything is possible and is what has inspired me to run the Boston Marathon. We have raised close to $7000 in just 3 short months. I am always so happy to raise funds for such a great cause that is so dear to my heart. After this amazing experience it makes me more and more confident that together we will cure FA. 

 

 

 

 

 

My name is Shelby Pelletier, I am 22 years old and on April, 20, 2015 I ran my first Boston Marathon as a proud member of the Mullaney Munchkins Team. I feel so honored to say that in conjunction with my fellow teammate, Brianna Mahoney, we raised approximately $7,000 for FARA. I know three remarkable individual’s effected by this horrible disease and I realized that running the marathon was the perfect way for me to use my talents to help make a difference. Throughout my four months of training, which happened to be during one Boston’s snowiest winters, I was motivated and inspired by Kaela, Joey, Nick. The three of them are some of the most inspiring individuals I know as I have yet to have an encounter with one of them where they do not have a smile on their face. Their positivity and determination to beat FA and to not let themselves be defined by disease drove me during my toughest runs. 

The Boston Marathon was one of the best days of my life, a day overfilled with emotions, that I am not sure I will ever be able to top. My favorite part of the race was when I saw Kaela waiting for me at Mile 17, it was so surreal that the person I consider my biggest hero was cheering so loudly for me.  Another momentous part of the race for me was when I was coming up on Mile 23, I was fatigued, especially with the rain and wind pushing against my face. But then I saw a woman with a bright orange sign that read “Remember why you started this journey.” When I saw that sign thoughts of Kaela, Joey, and Nick ran through my head and all I could think about was what amazing and resilient people each of them are and how they have never given up. It was at that point I knew for sure that I was going to finish that marathon, which was the least I could do to support three of the most incredible people in my life. Having spent a day surrounded by so many people supporting one another, I am even more confident that together we can cure FA! 

 
 

About the Author

The FARA Ambassador Program

The FARA Ambassador Program

The FARA Ambassadors are a united team of patient volunteers living with FA who are committed to supporting FARA in the search for a treatment and cure.
 
Together we seek to know more about FA, and FARA so we can be prepared to represent the community when the opportunity arises; speaking at events, to volunteers, potential donors, scientific groups, pharma partners, media interviews and other awareness and fundraising opportunities. We believe support is key to continued success toward our ultimate goal of treatment and a cure. Participants in the FARA Ambassador Program are passionate about building and upholding relationships within the FA community.
 
The FARA Ambassadors are positive, supportive, peer representatives for the FA community, actively raising awareness and funds for FARA. To learn more about the FARA Ambassador Program or to have a FARA Ambassador speak at your event, please contact: info@cureFA.org.

 

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