When my cousin's son, Christopher, was 10 years-old, he was diagnosed with FA. When she told me I said, "we need to fight this". I told myself that I was going to do something to help this cause. It is not fair for children and adults to have to deal with this. I love my cousin like a sister. Christopher is like a nephew to me and I couldn't just sit and do nothing.
I did some research on FA and that is how I found FARA. The website is fantastic. I love that it provides information on current studies of FA research as well as patient and family resources. After I read over the website, I decided to join Team FARA.
My first race for team FARA was just a of couple days ago, on March 16, 2013. It is a wonderful feeling to know that I am running to help Christopher and FARA. I'm so flattered that so many generous people have supported me in my efforts.
I plan to continue to run for Team FARA and help raise awareness of Friedreich's Ataxia. I hope and pray that someday, FARA will find a cure for FA!
- Kelly Alfieri