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While they are geographically dispersed, Team FARA is united with the same goal: to draw attention to FA through acts of physical endurance and to support the advancement of FA research towards treatments and a cure for FA.
On May 9, 2015, Team FARA had a team in The Million Dollar Bike (MDBR) to benefit the Rare disease Research Center at University of Pennsylvania. We had team members on the 12 mile and the 33 mile route plus we had a table post ride with FARA/rideATAXIA info. Team members included Cindy Timbie, Justin Timbie, Dr. Dave Lynch, Pat Ritschel, Brie Von Hausch, Liam Dougherty, and Sarah Gelbhard.
I had the honor of riding with Dr. Dave Lynch, FARA Board Member Pat Ritschel, and Justin Timbie.Add a comment
"Running was the time he felt most alive. He knew that as surely as he'd ever known anything." -Runners world
This is the first time I've ever attended a marathon. Rock and Roll Marathon in Nashville Tennessee. Unexpected right? Team FARA was going to be in my town, I was excited to know that "FARA" was headed down south!Add a comment
The Boston Marathon is the world's oldest annual marathon and ranks as one of the most prestigious road racing events. This year was the 119th!
Jeff Morgan is my cousin but more like a brother. This was his seventh Boston Marathon, second time running for Team FARA, and first time I was able to attend. It was a bitterly cold, rainy, and windy day but that didn't stop Jeff or the 30,000 others running with him. It also didn't stop the thousands of spectators from lining the streets and cheering them on. The excitement of being in the crowd and waiting to catch a glimpse of Jeff was such a wonderful experience. Jeff raised $1,400 for FARA, raised awareness to the crowds who saw his Team FARA jersey, and made his cousin very proud and thankful to have such loving family.Add a comment