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FARAFARA Cure FA

Team FARA Blog

Team FARA members are running, walking, biking and swimming for FA research around the world.

While they are geographically dispersed, Team FARA is united with the same goal: to draw attention to FA through acts of physical endurance and to support the advancement of FA research towards treatments and a cure for FA.

New York City Marathon 2013

Stories From the Road

Steve Wisinski - Participated in honor of Jack DeWitt

Last year after NYC Marathon was cancelled I ran in another marathon in Columbia City, IN, which is about 4 hours from my house.  I wasn't able to finish that race due to a stomach bug, but the DeWitts came down to support me and gave me the clock necklace as a trophy. They were very sweet and supportive and that trophy has meant a lot to me. Since I was finally able to run this year I made sure I brought the clock with me. 

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Team Van Schoick - Athens Half-Marathon - October 20th

Friedreich’s ataxia has been a part of my life as far back as I can remember. My two older sisters have FA, and my family has long been fundraising for research and awareness of the disease.  After years of hosting large fundraising events, my family took a break just as Team FARA was organized. It was a great opportunity for me and my now husband, Kyle, to start running races for FARA. The simplicity of the sign-up process makes it trouble-free for members to join your team, and by distributing the team website link, donations from family, friends, and colleagues are quick and easy to complete online.

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Yellowstone-Teton 100-Miler - Kevin Bush

I first became aware of FA earlier this year when I was introduced to Bridget Downing.  When I met Bridget, while it was clear she had a leg condition, we didn't discuss the specifics.  When I later learned she has FA, I found the FARA website and educated myself on the disorder.  The more I learned, the more amazed I was at Bridget's independence and positivity, which seems to be a theme among FA patients.  She truly does not let FA define her, and it really made me consider if I would be as strong, faced with the same reality.

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Swim Around Key West - Kristin Jones

Friedreich's Ataxia hasn't presented physical manifestations in my body, but the repercussions of FA have rippled across my life in ways that have changed the lives of many generations to come. Over the course of my life I have watched this disease twist it's unending fist around two of my dear brother's bodies. As a young child I remember running amok with Ryan, who is two and a half years my senior, around our neighborhood with the numerous other children that lived near us. I have seen videos and have my own memories of him biking, running, laughing, exploring and enjoying his childhood. Owen, who was born four years after I was – lived a similar childhood as Ryan did, and even had his own younger sibling to torment and explore with. Trevor was born three years after Owen was, and nine years after Ryan. It was at this time that the gravity and seriousness of the disease became apparent.

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TriRock Philly - Evelyn Wu

I’ve never considered myself an athlete, let alone a tri-athlete. But when Kyle took on a new challenge and signed up for the TriRock Philly Sprint Tri (swim 0.5 mi, bike 15.7 mi, run 5K), Jamie and I decided we could push ourselves too and signed up with him. We knew it would be difficult but doable if we trained hard. I was getting in better shape every day from doing CrossFit, and to address my biggest weakness, I took a swim class at the Y down the street from the FARA office. Jamie and I also made a pact that we would wait for each other in the transition area to make sure we would both get through it, not worrying about our time. Little did we know that a week before the event, a potent virus would knock out all of the FARA staff--except me!

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