On January 31, 2016, I participated in the Milwaukee Icebreaker Indoor Marathon at the Pettit National Skating Center in Milwaukee, Wisconsin. This was my very first time running for Team FARA, and it was a truly extraordinary experience. The Pettit Center is a very unique venue. As we circled the track 94 times, we were treated to the view of speed skaters zipping around the inner circle of the rink. The sounds of scraping ice resonated in the background while the disc jockey played an assortment of inspiring tunes while we trudged along the 26.2 miles.
What made running this race extra special were the people I was running for. I laced my sneakers that morning for my two amazing friends, Sam and Alex Bode. Meeting these two individuals was the product of a little bit of luck and fate. During the summer of 2015, I began doing some research on Friedreich’s Ataxia. My daughter has a very close friend with FA and I wanted to learn everything I could about this disease. During the course of my research, I came across a very inspiring video featuring Sam, Alex and their mother Mary. After watching the video, I knew I just had to meet these three. A short time later, I got in contact with Mary, Sam and Alex and had lunch at their home. Quite simply, we became fast friends and I can’t tell you how happy I am that we have become such close friends. You will not find a more caring, thoughtful, generous and selfless bunch than that crew! Sam and Alex inspire me with their drive, persistence and resilience. What is most distinctive and memorable about these two siblings is the way you feel when you are with them. Laughter is a staple of their household and smiles are plentiful! Quite simply, Sam and Alex inspire me to be a better person and a better friend.