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Olivia Ramazio

Olivia RamazioMy name is Olivia Ramazio, I am currently 18 years old and I live in Florida.

Ever since I could remember, I was very athletic and had a lot of energy. All of my favorite activities and hobbies began to get harder, starting at about age 6. I started feeling extremely out of breath, my feet kept crossing in front of each other and my balance started to become unstable.

Freshman year of high school was especially difficult. I started realizing I needed to hold onto someone when I was walking, as I did not want to fall. Before I knew it, I lost my balance and got a severe concussion. I went to see a neurologist and she noticed the way I walk wasn't normal, so she ran some tests and sure enough I finally found out what was wrong with me.

I was officially diagnosed with Friedreich's Ataxia at 15 years old. It took me almost 2 years to accept that I had FA. I ended up leaving school to focus on my health and cope with everything. I needed to keep doing school so, I ended up joining a home school program for people with health problems that can't attend normal school. Thank goodness!

I started becoming involved in the FA community in March of 2018. The community helped me majorly and made me realize I am not alone in my journey. I got inspired to start my own website and get an Instagram to become more involved in the community and help others that might've been in the same situation as me.

Click here to visit my website or Instagram.

I may have FA, but it doesn't have me.

FA is not me, it's just a part of me.

Together we will cure Friedreich's Ataxia once and for all.


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