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FARAFARA Cure FA

Scarlett Drews

Scarlett DrewsMy name is Scarlett. I'm 22 years old and I live with Friedreich's Ataxia. I was diagnosed at age 14 and I didn't start having symptoms until I was nearly 20. My story is quite unique because I was diagnosed years before symptoms appeared. When I was 10, I had foot surgery and didn't heal very fast. Because of this, the doctors suspected a neurological disorder. Then 4 years later, I met with the right neurologist who identified FA right away.

 

I am currently a full-time college student majoring in philosophy. I love to read, travel, draw, take pictures and do anything artistic. FA makes some things difficult sometimes, but ultimately it's just a very small part of me. There are good days and bad days when dealing with a debilitating disorder. However, the good days outnumber the bad days tenfold. I will get very upset and frustrated occasionally but I am constantly filled with pride and a strong sense of belonging because of the wonderful FA community. Therefore, as far as happiness is concerned, I come out ahead. C'est la vie.

About the Author

The FARA Ambassador Program

The FARA Ambassador Program

The FARA Ambassadors are a united team of patient volunteers living with FA who are committed to supporting FARA in the search for a treatment and cure.
 
Together we seek to know more about FA, and FARA so we can be prepared to represent the community when the opportunity arises; speaking at events, to volunteers, potential donors, scientific groups, pharma partners, media interviews and other awareness and fundraising opportunities. We believe support is key to continued success toward our ultimate goal of treatment and a cure. Participants in the FARA Ambassador Program are passionate about building and upholding relationships within the FA community.
 
The FARA Ambassadors are positive, supportive, peer representatives for the FA community, actively raising awareness and funds for FARA. To learn more about the FARA Ambassador Program or to have a FARA Ambassador speak at your event, please contact: info@cureFA.org.

 

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