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FARAFARA Cure FA

Vlad Ayriyan

VladAyriyan

Hello, my name is Vladimir Ayriyan, I’m 26 years old and I was diagnosed with Friedreich’s Ataxia when I was nine years old. I was born in Armenia, my family and I moved to San Diego, California, when I was three years old.

Going through my school years with this disease was very difficult because your body keeps getting worse and constantly having to adjust due to the progression of the disease. I have been permanently wheelchair bound for eight years. I got my associates degree when I was 21, I wanted to further my education and pursue a bachelor’s degree but fatigue got the best of me.

 

Now it’s all about keeping my body in shape, so exercise and eating right is my priority. FARA has really changed my life by connecting the FA community, given me a greater purpose as an ambassador, and a greater understanding of the science behind FA because of all the work that they do.

I have hope for the future, and with a great support system from my family and friends, anything is possible.

 

 

About the Author

The FARA Ambassador Program

The FARA Ambassador Program

The FARA Ambassadors are a united team of patient volunteers living with FA who are committed to supporting FARA in the search for a treatment and cure.
 
Together we seek to know more about FA, and FARA so we can be prepared to represent the community when the opportunity arises; speaking at events, to volunteers, potential donors, scientific groups, pharma partners, media interviews and other awareness and fundraising opportunities. We believe support is key to continued success toward our ultimate goal of treatment and a cure. Participants in the FARA Ambassador Program are passionate about building and upholding relationships within the FA community.
 
The FARA Ambassadors are positive, supportive, peer representatives for the FA community, actively raising awareness and funds for FARA. To learn more about the FARA Ambassador Program or to have a FARA Ambassador speak at your event, please contact: info@cureFA.org.

 

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