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Rock Around the Clock for FARA


On November 28th, the FA community in Rhode Island pulled out their dancing shoes. It was the first Rock around the Clock for FARA and I don’t think it will be the last! From noon to midnight, over 25 musical performers kept the crowd singing, dancing, and tapping to the beat. For twelve hours there was always music to be heard across three rooms at Studio One RI in Lincoln, RI. There were small bands, big bands, DJ’s, singers, even karaoke! 

RockAroundtheClock2We are thankful for all the groups that donated their time, and more importantly, incredible talent to bring us a melting pot of musical enjoyment in one day. I heard classic rock, country, jazz, garage, dance hits, electronic, alternative rock, acoustic, pop covers, Celtic rock, and even saw Elvis! Where else can you hear all these styles in 8 hours (…OK I admit, I don’t have the stamina of Matt DiIorio and didn’t make it the whole twelve hours)! 

The dedicated efforts of Mike Crawley and the whole team in RI paid huge dividends toward another successful fundraising event. From ticket sales, food and drink proceeds, raffle entries, and generous donations, the event raised nearly $6,000 for FARA! But more importantly to us, the community came together, learned a few steps, botched some lyrics, and laughed together in support of FARA. Right now we are all dancing for a cure, but one day we will be dancing with a cure. Can’t wait for next year!


About the Author

The FARA Ambassador Program

The FARA Ambassador Program

The FARA Ambassadors are a united team of patient volunteers living with FA who are committed to supporting FARA in the search for a treatment and cure.
Together we seek to know more about FA, and FARA so we can be prepared to represent the community when the opportunity arises; speaking at events, to volunteers, potential donors, scientific groups, pharma partners, media interviews and other awareness and fundraising opportunities. We believe support is key to continued success toward our ultimate goal of treatment and a cure. Participants in the FARA Ambassador Program are passionate about building and upholding relationships within the FA community.
The FARA Ambassadors are positive, supportive, peer representatives for the FA community, actively raising awareness and funds for FARA. To learn more about the FARA Ambassador Program or to have a FARA Ambassador speak at your event, please contact:


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