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Ride Ataxia Orlando

Ride Ataxia Orlando was another success!! This was my second year attending and am proud to say my first year actually being IN the ride on my new handcycle!

The turn out of participants was amazing. And we came together for a beautiful day filled with sunshine, scenic rides, and togetherness. I personally was a recipient of this year's Ataxian Athlete Initiative grant and received a brand new handcycle from Top End in August so I can ride to spread awareness for FA. Others that received grants of this year and last were Lealan LaRoche, Barry Rice, Mary Vida, and Bill Ramsey, and myself. Together more than 200 participants rode 50, 25, 16, and 4 miles to pedal towards a cure.

Swing Away at FA

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4th Annual Swing Away at FA
Saturday, October 19, 2013 Wiffle Ball Tournament & Family Fun Day
Benefitting FARA

 

In honor of the Stacks Family Jason and Candy, parents of Hannah, diagnosed with Friedreich's Ataxia in 2009, and, after three years of praying “that lightning wouldn’t strike twice,” her younger brother Austin, diagnosed in 2012.

Ride Ataxia Portland

Have you ever been to a big event like a wedding where you know a ton of people? That is how Ride Ataxia Portland felt to me. This was my second year attending and first time riding. The weather man had us down for rain, rain and more rain. I arrived at the event around 8am. The sun was peeking out and it was not raining. Yay!

There were friends, family, coworkers and many FA families as well. There were so many people to talk to and just a quarter of the people were there this early. The hour flew by. At 9am the 24 & 36 mile rides started. Everyone lined up and they were off! It then hit me that most of the members on my teams were doing the 12 mile route and we were doing a group photo afterwards. I am slow and needed more time so I left on my route at 9:10am rather than 10:00 like the rest doing the 12 mile route. My son, who is 10, rode with me all 12 miles right by my side.

6th Annual Century 21 King Golf Classic

The Friedreich’s Ataxia community has so many wonderful people working so hard towards a singular goal: treatment and a cure for FA. I always feel so blessed and thankful to attend FARA events, it’s so encouraging to be striving for a different future alongside fantastic people as dedicated as the Lamascus and Cardenas families. The Annual Century 21 King Golf Classic, held in Fontana, California on September 19th, is the result of the dedication and faithful friendship between two families.

When Josh Lamascus was diagnosed with Friedreich’s Ataxia his dad, Brian, asked his good friend, Julio Cardenas, if Julio’s annual golf classic could be dedicated to raising funds for the Friedreich’s Ataxia Research Alliance. The answer was and continues to be a very supportive YES! When I say that this tournament is rooted in faithful friendship, I am not exaggerating one bit, the bond between these families is strong and clear to all that attend the event. In the face of something as devastating as a diagnosis of FA, faith and friendship can move mountains. I am so thankful to be pushing towards the same finish line as the people behind this event, I have no doubt we will reach the triumphant end!

Fuzzy Buzzy 2013

September 8, 2013 was our annual golf tournament in Windham, NH. For 28 years my Uncle Paul “Buzzy” Stanieich has been hosting this tournament. The first 18 years the Fuzzy Buzzy was an all guys, all day just for fun tournament. In 2004, Fuzzy Buzzy became the Fuzzy Buzzy Charity Golf Tournament with proceeds going directly to FARA.

Over the past 9 years we have raised $89,000. Our goal this year was to reach $100,000. I am happy to say, this year, the 10th year, we surpassed our goal. We raised $16,000, making our ten year total $105,000.

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