Accept Cookies?
Provided by OpenGlobal E-commerce

Please wait while your page loads ...

Glenn ter Borg & Katia Gomes

Katia 5Name: Glenn ter Borg

Age: 47 (born 1972)

Where do you call home? Katia and I live in Teresina, Piaui, Brazil

Education: Computer Sciences, 3D Animation, Graphic Design. Now retired from working as a video editor at a TV station, I'm planning to create short animations based on my own adventures!

Harley Danielle Shepherd

HarleyI was born 27 laps around the sun ago in Sagittarius, the moon in Scorpio with a rising sign of Leo.. yeah, I kind of like astrology.

Can you tell?

I was born and raised in wonderful Colorado. Spending most of my childhood outside panning for gold, exploring mother nature, swimming & boating. I was diagnosed with Friedreich's Ataxia when I was 11 and coming from an active childhood as I had, I was quite devastated. As walking got harder and it was more noticeable that I was different, I just didn't do anything. I skipped school & never left the house. It wasn't until I was 17 at a family trip to Mount Rushmore when my uncle said, "You're either using this wheelchair I brought or staying in the truck." We ended up completing the Presidential Trail, 400+ stair hike around Mount Rushmore.. all in a wheelchair!

Nadine Kleine

NadineName: Nadine Kleine

Age: 23

Where do you call home? Germany

What is a current goal you have with your education? I'm in med school right now, and I'm planning on working as a neurologist.

Who do you live with? I live on my own in an apartment.

How long have you known you are living with FA? I've known since April '19, but I've had symptoms for over six years, I just got misdiagnosed with Guillain-Barré's Syndrome, and it took very long to find out that it's FA.

Lily Pierce

Lily 7Name: Lily Pierce

Age: 26

Where do you call home? The suburbs near Greensboro, NC

Education: I have a Bachelor's degree in English.

Who do you live with? I live in a big house with my fiancé, dad, mom, and brother.

What's a typical day for you? I work for a local newspaper part-time from home; I serve in volunteer roles through the United Methodist Church and in United Methodist Women (a women's mission organization in the church); and I blog at retrospectivelily.com. A typical day for me is a mixture of doing my paid job, doing things related to my volunteer roles, reading, writing, and attending meetings (ha!). I also devote a good chunk of time to working out...more on that below.

January Teen Hangout 2020

lets talk about petsBack for 2020!!

We hope you can join the FARA Ambassadors for a hangout for teenagers, 13-19, with ataxia (of any form). FA Teen Hangouts are hour-long web-based hangouts. If you don't have ataxia, you are not allowed to participate in the hangout. This is simply a place to meet and talk to other people who may be going through struggles and good times similar to you. There will also be at least three adult FARA Ambassadors present. The adults will be there to help keep the conversation safe and going. FARA Ambassador Madelyn Frederick will lead January's hangout.

The theme: The special bond between animals and pets and owner with ataxia! Do you have a pet? Maybe you want one. Does your pet care that you have ataxia? Does your pet help you through a long day? Is it hard to take care of your pet? Join us to talk or just listen. We are sure you'll find you aren't alone! It is just a relaxed conversation...the theme gets us going, but we definitely don't stick to it!

Page 1 of 200

SHARE

FacebookTwitterLinkedInYoutube
Event G.jpg

 

Archived in
  the Ambassador Blog


Site Map     Privacy Policy     Service Terms     Log-in     Contact     Charity Navigator