Hi, my name is Freda Butler-Bohn. I'm 52, and I'm from Pauline SC and live in Arden, NC.

I have Friedreich's Ataxia. I was diagnosed around age 32 when I was going to have my 3rd child. I have three children now, two boys and one girl. Aged 20, 23, and 30 years old plus I have two grandkids. For pets, I have three cats and a bird. I went to college and am a Registered Nurse. I worked up till 2012 when I first became an RN I wanted to be a Missionary midwife, but I can't do that so I may go back to get BSN so I can work somewhere as a nurse sitting down.

Name: Julia Mancebo López

Age: 51

Where do you call home? I live in Madrid (Spain).

Education degree(s): I graduated in pharmacy. For me, it's really important to have had this education, but i haven't worked in this field.

Who do you live with? I live with my husband and my son that is 22 years old.

Name: Valbona Ferati

Age: 34 years old

Where do you call home? Kosovo

Education degree(s): High school, three years English language course.

Who do you live with? My parents, my brother, and my sister. I have two other sisters who don't live here.

What's a typical day for you? I wake up at 11 o'clock, I ride my recumbent bike and have coffee. I am wheelchair-bound, so my mother gets me out for a ride in the city. When I don't go out, I read books, especially romance. When it's evening time, I watch the news on TV, then any TV programs shows. Netflix is my best friend each night from 10 pm till 1:00am. Oh, I forgot to mention the telephone and internet.

Name Frances Clair

Age 29

Where do you call home? Chicago, IL

Who do you live with? My parents, one sister, our dog, and my cat.

What's a typical day for you? When we aren't experiencing a global pandemic, I wake up in the morning and work on fictional writing and then go to work on weekdays. I work at an after school program for elementary school children, and I am one of the adults in charge of the program at that school. I've worked there for eight years.

How long have you known you are living with FA? I was diagnosed in February 2007. About a year earlier, my pediatrician was alarmed by my lack of balance. She sent us on a hunt that ended in a blood test to diagnose FA a month before I turned 16.