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Brett Davis

BrettName: Brett Davis

Age: 38

Where do you call home? Fayetteville, NC

Education degree(s): Associates degree in computer programming

Who do you live with? I live by myself.

What's a typical day for you? I try to exercise somehow every day. I like to play a little chess with the FA friends and take care of myself.

How long have you known you are living with FA? I was clinically diagnosed when I was 12, so 26 years ago. It wasn't confirmed in a test until I was 15.

Are there any others with FA in your family? No

July Teen Hangout

Screen Shot 2020 07 09 at 4.05.52 PMJoin the FARA Ambassadors for a hangout for teenagers, 13-19, with ataxia (of any form). FA Teen Hangouts are hour-long web-based hangouts. If you don't have ataxia, you are not allowed to participate in the hangout. This is simply a place to meet and talk to other people who may be going through struggles and good times similar to you. There will also be at least three adult FARA Ambassadors present. The adults will be there to help keep the conversation safe and going. Join our Saturday hangout this month to talk with Kate Walker and Madelyn Fredrick about having a YouTube channel. They each have FA YouTube channels. So, let's talk to them about how they do it, how it helps others, and how it helps them. Join us to talk or just listen. We are sure you'll find you aren't alone! It is just a relaxed conversation...the theme gets us going, but we definitely don't stick to it! It isn't counselling.

Jennifer Gasner

Jennifer GMy name is Jennifer Gasner. My FA diagnosis came nearly 30 years ago, at 17. It was genetically confirmed when the test became available. I have a BA in English and a Masters in Recreation. I grew up in Wisconsin. In 1999 I started using a wheelchair and began working with Independent Living Centers, (ILC's), an important resource for people with disabilities that I knew nothing about. That experience changed my perspective on disability so much. It led to being proud to be disabled, which I had been avoiding referring to myself as. I also felt comradery with my disabled friends, regardless of their diagnosis. I had only briefly met one other FA'er and felt very alone. It was great to discover commonalities and people who had experienced things I hadn't as FA progressed.

Matthew Jordan Penman

MatthewName: Matthew Jordan Penman

Age: 35

Where do you call home? Calgary, Alberta. Canada.

Education degree(s): I have a diploma in Professional Counseling, Certificate in Addiction Work and I am currently working on my Masters in Counseling.

Who do you live with? I am living with my wife, my father, who lives with us, and our fur babies, Fergus (Husky/German Shepherd), and Charli (Purebred Boxer).

What's a typical day for you? Currently, I am working in a harm reduction facility for seniors and working on my portfolio for my RPL to get into a master's program. We are trying to buy a house right now, and it's our first, so it's very time-consuming.

María Luisa Ledesma Cano

Maria MTC 3Name: María Luisa Ledesma Cano

Age: 27

Where do you call home? Talarrubias, Badajoz, Spain

What is a current goal you have with your education? My dream would be to work as a social worker, because I am studying it.

Who do you live with? I live with my mother, but in the school period, I live in a center where my life is independent.

What's a typical day for you? Well, in my town, it's a little boring because there is little accessibility. But where I live for a few months, I get up to study and do activities.

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