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June FA Hangout 2020

Maintaining IndependenceThe FARA Ambassador Program presents an FA Hangout talking about: How do you maintain independence? Tell us! June 23rd and 24th at 8-9:30 PM EST. This hangout will be led by Justin and Lake.

At FA Hangouts, we laugh, we connect, we hangout, we learn from and about each other...it is so fun! It is just an informal discussion with a theme. We just talk when the theme has run its course, no pressure. People who just want to listen are very welcome!

Every Hangout is open to anyone 18+ with FA and a translator if needed for hearing or speech difficulties. (mark your calendars, FA Hangouts will be the last consecutive Tuesday and Wednesday of the month, except on holidays and the like) at 8-9:30 PM EST.

Elsaid Younes

ElsaidName: Elsaid Younes

Age: 35

Where do you call home? I live in Cairo, Egypt.

Education degree(s): I hold a master's degree in theoretical chemistry from Lund University in Sweden.

Who do you live with? I live with my family, and I am Single.

What's a typical day for you? Staying at home on my computer.

How long have you known you are living with FA? I was diagnosed with FA in 2001.

Freda Butler-Bohn

FredaHi, my name is Freda Butler-Bohn. I'm 52, and I'm from Pauline SC and live in Arden, NC.

I have Friedreich's Ataxia. I was diagnosed around age 32 when I was going to have my 3rd child. I have three children now, two boys and one girl. Aged 20, 23, and 30 years old plus I have two grandkids. For pets, I have three cats and a bird. I went to college and am a Registered Nurse. I worked up till 2012 when I first became an RN I wanted to be a Missionary midwife, but I can't do that so I may go back to get BSN so I can work somewhere as a nurse sitting down.

Julia Mancebo López

JuliaName: Julia Mancebo López

Age: 51

Where do you call home? I live in Madrid (Spain).

Education degree(s): I graduated in pharmacy. For me, it's really important to have had this education, but i haven't worked in this field.

Who do you live with? I live with my husband and my son that is 22 years old.

Valbona Ferati

Valbona 2Name: Valbona Ferati

Age: 34 years old

Where do you call home? Kosovo

Education degree(s): High school, three years English language course.

Who do you live with? My parents, my brother, and my sister. I have two other sisters who don't live here.

What's a typical day for you? I wake up at 11 o'clock, I ride my recumbent bike and have coffee. I am wheelchair-bound, so my mother gets me out for a ride in the city. When I don't go out, I read books, especially romance. When it's evening time, I watch the news on TV, then any TV programs shows. Netflix is my best friend each night from 10 pm till 1:00am. Oh, I forgot to mention the telephone and internet.

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